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Jimjams??? HELP!!!!!!!!

86 replies

Chandra · 07/07/2004 15:12

I would like to apologise first for the abrupt method of contact.... sorry, I just thought that you were the person I could ask these questions and my e-mail is not working very well lately.

My sister's DS (2yrs3m old) has been exhibiting some symptoms of autism, finally after a year of asking diferent doctors the pediatrician refered him to a neurologist. The problem is that my sister is not very sure of what to expect, or what questions to ask, I think she is very shocked with the news mainly because autism is rarely diagnosed in my country (my guess, not because there's none but because there's very little information available).

I have been trying to find more information in the internet but the very few pages I can find in Spanish... well, let say that the information provided doesn't seem very reliable or I haven't find the good ones, so, I thought of asking the following:

If you could recommend the best websites you have find (in terms of diagnose, what to expect, early education and specially what questions to ask), which would they be? If you have to had them tranlated which would be the favourite ones?

Sorry to botter you in this way, but thank you very very very very much in advance.

Chandra & Pikis

PS Of course, if you are not Jimjams but you feel you can help, please be asured we would really apreciate your postings.

OP posts:
heartinthecountry · 26/07/2004 22:29

I agree with both of you, it is a rather idealised view (and a little american ). But do think that right at the beginning, it was kind of what I needed to hear (think that is what you are both saying too).

heartinthecountry · 26/07/2004 22:34

me too chandra - that message was supposed to pop up about 5 or 6 posts ago....

Davros · 26/07/2004 22:49

Chandra, I'm sorry if we've made you feel a little worried about how you approach this sort of thing. I'm well adjusted and not nearly as vulnerable as some newer parents (although still very vulnerable sometimes). You're doing a great job trying to help your sister and the line between being sensitive and interfering is a fine one and always changing. Its a tricky situation but you seem to be doing very well.

heartinthecountry · 26/07/2004 22:51

Feeling a bit uncomfortable about that last post. Reading subsequent posts not sure that is what you were saying at all Davros and Jimjams (i.e that you needed to hear it at the beginning). So sorry if I misinterpreted.

heartinthecountry · 26/07/2004 22:56

Keep getting my posts out of synch so not sure any of that makes sense. Please ignore all!

Davros · 26/07/2004 23:05

HIC, not what you said is spot on. It was a great thing to read at the beginning (and a bit American ). Totally agree with what you said.

Davros · 26/07/2004 23:06

Urgh, mean "no" not "not", its all a bit confusing and getting too late for me.....!

whymummy · 31/07/2004 09:12

hi chandra sorry to hear the news weren't good i hope your sister gets lots of advice and help,she does sound depressed wich is understandable when you're told something's wrong with your child,my sister has been told that my niece has fluid outside the brain,the paediatrician said babies have it but at 9 months old it should have been absorved,she's really down about it although they've told her not to worry,her new paediatrician is also a neurologist so she's in good hands.
hugs xx

Chandra · 01/08/2004 23:21

Welcome back Whymummy. Sorry to hear about Martina's problem, how is she doing?

OP posts:
Chandra · 01/08/2004 23:22

...trying to focus in the positive within the negative, it's only fortunate that these things have been discovered so early as that allows for a more efficient medical treatment.

{{hugs{}}}}

OP posts:
whymummy · 02/08/2004 08:04

thanks chandra
martina is ok,she's a very happy baby and very active i just hope is nothing serious.
any news from your sister and nephew?
xx

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