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Here are some suggested organisations that offer expert advice on special needs.

If anyone has *any* ideas to help my ds, please shout.

19 replies

essbee · 13/03/2007 11:33

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amynnixmum · 13/03/2007 11:35

Sounds like you're doing all the right things so no advie really but {{{hugs}}}

essbee · 13/03/2007 12:00

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amynnixmum · 13/03/2007 12:04

With the reward chart you used did you do only positives or did you include consequences for bad behaviour? I only ask as I have a treatment plan that the paed gave me for ds (6) that involves him earning points for all the things he is expected to do during the day as well as bonus points for good behaviour and fines for unacceptable behaviour. About 2/3s of what he can earn during a day go to "pay" for the things he would usually like to do in a day such as watching tv/ playing video games etc. The last 1/3 he can save up for treats. Its designed for children with ADHD but ds doesn't have this (although he has many traits) I'm sure he's on the autisitic spectrum though and this system works ell with him. We also do it with dd who is nt. I can send you a copy if you'd like.

essbee · 13/03/2007 12:11

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amynnixmum · 13/03/2007 12:15

The system should be fine for him. I think ds is probably hf asd (so does the paed) but he is unlikely to get a dx as he is doing so well. I'll find the disc I've saved it on and email it to you.

amynnixmum · 13/03/2007 12:18

Sorry just realised that "doing so well" sounds bad. I mean that when he wasn't getting the right support his behaviour was more extreme and he ticked more of the boxes for a dx. These days he has good support and is coping well so he no longer ticks enough of the boxes for a dx IYSWIM.

scoobyww · 13/03/2007 12:21

Amynnixmum..could I possibly ask you to send that reward chart to me too? It may be worth a go with my DS (11 and AS/OCD) and anything is worth a try! Thanks, Scooby. My email add is falcus9 at hotmail com

essbee · 13/03/2007 12:28

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amynnixmum · 13/03/2007 13:06

Have sent copies to you both. Please let me know if they came out ok as i have a new computer with Vista on it and I am still getting to grips with it.

scoobyww · 13/03/2007 13:22

Amynnixmum, opened with no problems, thanks so much!
Take care,
Scooby x

amynnixmum · 13/03/2007 13:23

Good luck with it Scooby. Its hard work to start with but definately worth the effort.

essbee · 13/03/2007 13:43

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essbee · 13/03/2007 18:00

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mummytosteven · 13/03/2007 20:54

have read but don't have much to say other than
1)can you speak to DS' teacher or Senco or someone who you have a good rapport with, and get them to explain what they are thinking/what extra help they would want, rather than you worrying and trying to 2nd guess them.
2)I have a friend who has recently been diagnosed with Aspergers as an adult - I wonder if I alerted her to this thread (I believe she sometimes looks on MN), if she might have some useful suggestions as to what might have helped her with these type of difficulties/feelings.

mummytosteven · 13/03/2007 20:55

PS - Has anything changed in the school environment that could be freaking him out?

bullet123 · 13/03/2007 21:35

Hi . I hope you don't mind me jumping and posting but it's been suggested I might be able to offer a persepctive that can help. MummytoSteven knows me, I have two young lads, the eldest of which is diagnosed ASD (he's 3.5) and I have a diagnosis of Aspergers. I only got my official diagnosis last November, but that was mainly because I had no clue others saw me as different and thought my struggles were just me. So it was a bit of a shock when my mum admitted to me herself, my dad, teachers and paediatricians had all noticed I was different but my mum had deliberately downplayed things as she didn't want me in a special school.
Anyway, this is PURELY from my own perspective, but these are some things that might help.
1: If he's like me he'll find it nigh on impossible to talk about his feelings and why he's upset. It's not a case of being stubborn, or shy, he genuinely won't be able to think of the words. Or (like me) he may hanve the words in his mind but be unable to get them out, sort of like a locked door in his head. So if he can write sit him down, on his own and tell him to keep a diary, or write a letter, detailing things that are upsetting him. If he can't write then tell him to draw.
2: It sounds like he is getting overloaded, probably lots of things building up in the day. I get very stressed in crowded situations, because there is too much visual and auditory information. When I'm really stressed (or sometimes just because) I sort of switch off and literally cannot understand what the person is saying. It is very difficult to explain when I can hold an intelligent conversation on the Roman Emperor Domitian and then not be able to understand "can you pass the salt" a few minutes later. I also cannot concentrate on looking at too many things. If I'm in a familiar place, or one that is quiet my eyes automatically just look at a small section of stuff, the double yellow lines, or a bit of brick wall, for example. If I'm in a strange environment, or I need to look for something I can't cope with the additional visual information so I go very tense and stressed and start snapping or saying "fine!" I internalise my difficulties, your son appears to externalise them. If he is given something like a book, or some quiet music, or is able to walk off somewhere quiet, that may be the help he needs to settle.
I need time and space on my own, especially after dealing with large groups of people. Just a few minutes sometimes can be enough to make me feel better. Letting your son stay under his desk for an agreed five minutes at the start and end of each lesson may help him. I presume it's the feeling of being a bit enclosed and apart that he likes.
I had a terrible temper as a child and adolescent, really bad, although what I do want to make clear (because this will almost certainly apply to your son as well) is that nothing I did was ever for attention, in the sense that I wanted to get my own way. I might have sometimes been trying to tell things that I couldn't articulate (though I still can't be sure on that, I'm just surmising based on behaviours following incidents) but I never wanted to draw attention to myself.

mymatemax · 13/03/2007 22:15

Bullet what a wonderful post, that info makes more sense to me (& I'm guessing loads of others out there) than the hours spent in CDC & CAMHS.
Esbee, sorry for butting in but hope that info helps you also. Good luck & I hope things improve.

amynnixmum · 14/03/2007 10:59

Great post bullet

It has given me some ideas for my ds as his behaviour has deteriorated at the moment and neither me nor his TAs can get to the bottom of what going on. I'll try the diary type thing and see if that helps.

mummytosteven · 26/03/2007 20:05

bump
don't know if you ever managed to get back to this essbee

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