I've been fairly infrequent here, but several have given me wonderful advice, and may remember me, so I jsut wanted to share my good news.
I've been concerned about ds1 since he was about 6 months old, and about a year ago we started to suspect autism, and his paed felt the same way. Over the last year, we've had ups and downs, from thinking maybe he was NT, so having him completely non verbal and in nappies.
Today we finally got an explanation. He has a mild sort of hypolaxia in his joints. He has come on loads in the last year but is still amazingly bendy compared to normal and intoes(?) walking so she said it was no wonder he is clumsy. It also explains why he is always tired and his behavoural issues, since the physio said that he will be putting so much effort into gross motor skills that it will tire him out and behavioural issues can arise as a result of the effort too. His fine motor are still very delayed so he is going to get OT, but isnt bad enough anymore to get PT, though he shoudl have had it a year ago, and also speech therapy.
I'm so relieved that we have finally got an explanation, and I can tell all those who told me I was imagining things and made comments like 'please don't think of him like that' to go stuff themselves. It's like a jigsaw finally fallen into place, the physiotherapist was wonderful. We've jsut got to get the eeg sorted now, but at least I now have something concrete to tell people who think I am imagining things!
It feels kind of bad to feel so happy about the fact that he does have something slightly wrong with him, but I think I knew that all along something was slightly askew and at least now, after nearly 3 years of fighting he will finally get some support and help that he needs.