stupid community paed.......!

[lourobert]

Had our 4 monthly appt today and Ive never known anyone to be so bloody negative....if I hadn't have alrady been deptressed whn I went in I certainly would have been when I walked out.I know they have to be realistic but surely it can be done with a bit if praise for all the things my son IS doing.

She barked on and on and on about his tracking, as if I duidnt know that his tracking isnt particularly good, Im sure if she'd hled a bloody mars bar infront of his face hed have tracked that pretty well...! I did proceed to tell her all the things that my son is doing so wel in.

DOnt get my wrong, shes going to chase up yet another eye appt but I just felt she could have praised his for all the new skills he'd learnt like smiling and babbling.

Havent got to see her again until July and that suits me fine.

Hi Lourobert, nice to hear from you again, but sorry you've had a crap time today. I know exactly what you mean - at these appointments/assessments I have resigned myself to the fact that DD3 won't perform for the audience. You know that your boy is making progress, and thats what matters. And I've just looked at his foto again - he is delicious .
I remember when DD3 was in nursery, and I went to parents evening - the teacher began with a sigh "well the poor little thing has so many problems...." Err, yes, I KNOW!!!
But despite all her problems she IS making some progress, so as you say, its especially important not to overlook the positives.

Sorry it went so bad. I agree that a lot of the time so much emphasis is put on what they're not doing - the negatives. That just seems to be how the whole system works. I've had plenty of appts that went like that - I think sometimes my dd is out for as much support as she can get and is savvy enough to "regress" for her paed to secure all of this!

Glad the eye appt is going to be chased up. This is the 'ammunition' needed. Just a shame it makes you feel so cack.

Isnt it funhny how they dont want to 'perform' for an audience.....I like your theory ejb about them being clued up enough to regress, like they get the last laugh. He made me out to be a liar today just laying there......!

head girl- he is lush (but then I am biased) I know that Louis is making progress and so does his portage worker as he seems to 'perform' best for her...think he fancies her I just thought it was a shame not to praise me little man for all his hard work.

Hes bringing my lots of pleasure at the moment except right now as hes wide a awakw trying to roll in his cot....i can hear him kicking the side of the cot as I type- obviously didnt work him hard enough at hydrotherapy today

she doesnt sound very nice

Ours is always so pleased to see Ellie and is really excited by the things she can do each time she sees her

Its dissapointing for you isnt it as you want to hear some one 'who knows' (supposedly) say to you how good it is what he is doing

Hi amy claire. No its not worthing. Im in Portsmouth.

anniebear- i was disappointed cos I thought you would be positive as hes changed alot since out last appt and its nice to hear it from someone else other than your mum whose totally biased anyway

Hes not had any infanitle spasms for about 4 weeks now and I notice a huge difference in this period- did you notcie this once Ellies seizures had stopped?

hi, sounds familiar... from what i have heard, community paeds are not exactly known for their sensitivity and communication skills! ours is a vile, hairy-legged, braless and saggy breasted patronising bureaucrat and I once walked out from an appointment because she was being so offensive. But unfortunately, the system demands that they manage the process. sorry she made you upset. your son sounds wonderful!

Mine is lovely and he's very positive about Celyn despite her being a blind quadraplegic.
And he's open to jokes.

I presume you meant becasue she wasn't positive lol

I was getting worried then lol lol

It was amazing when Ellies seizures stopped

Obviously very different cirumstances to your little one, Ellie was given Nitrazapam on the Monday and two days later her IS was down to about 3 a day the next day 2 the next day...Christmas Day..NONE!!!!

Best Present ever and she literally 'woke up' overnight! Within a few days she was cooing and smiling and taking notice of everything

I am so glad you are seeing a difference

And I think your Paed is a misery guts not to be more pleased

Know the feeling Lou- sorry she was so narrow focussed

had to listen to someone today telling me ds3 was GDD instead- er, no. GDD is ALL areas- DS3 is fine in gross motor skills, she said that a child who makes eye contact sometimes isn't 'autistic autistic'

errrr- how many yr=ears were you studying not to notice its a spectrum???????

Dur.

Then she (a friend but one we're considering hiring for assessment- salt) stood around discussing how annoying their kids (same age as ds3) were coz they asked for the loo on car trips- DS had just dirtied his nappy and not even noticed.

And- and- (sorry LOL) one of them (went home to see some friends) has a daughter who doesn't say much (coz her aprents are idiots- brthel running scam running idiots) and she says she was dx's as DAFT, yeah OK- and her LEA has offered 1 - 1 full time at MS!! And DS3 has had no contact from LEA whatsoever! How fair is that?

LOL annie. of course I mean SHE, haha!! I guess we only have to see her everyfew months and as were under a neurologist aswell it can widen the time that we need to see her.....shes the onlt PITA that weve encountered though.

I LOVE our portage and SALT- our SALT is fantastic- he has got so much energy hes just fabulous.

peachyclair its not fair is it. Im only really starting to understand how unfair it really is and a friend said to me yesterday 'it must be nice that Louis isnt mobile yet as it saves you having to do loads of running after him'! Yeah I bloody love the fact that hes 16 month and not able to crawl let alone walk, saves me legs doesnt it- its great. She still didnt realise what she'd said....and shes asked whey I dont ever go around to see her!! UMM?

People say so much without thinking dont they

what a stupid thing to say to you

you would give anything to be shattered becasue you are chasing your 16month old everywhere