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Original poster

The hospital called me today

50 replies

lou33 · 27/02/2007 16:24

They have a cancellation, so ds2 is going in for his first botox on the 8th march. Pre op assessment on monday. Now i am getting all emotional about it, which is so unlike me.

But with the poss bankruptcy and exh being no help, my bf emigrating and the 8th march also being the anniversary of my mother dying, i feel stressed, so it's gonna be tough.

Four weeks of intensive physio as well , afterwards. Poor little mite.

And a slim chance of it working. But any chance is a chance yes?

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Original poster
lou33 · 05/03/2007 21:13

thats good

they told me not to send him to school until monday

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twoisplenty · 05/03/2007 21:14

Really? I sent ds the next day!! What is the reason to wait until Monday, if you don't mind me asking?

Original poster
lou33 · 05/03/2007 21:29

because of the ga he said

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twoisplenty · 05/03/2007 21:36

Who said, Lou?

Original poster
lou33 · 05/03/2007 21:50

the consultant

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MrsPhilipGlenister · 05/03/2007 22:02

Sending you and ds2 very best wishes, lou33. Was just thinking about you and him as I walked to station this morning.

(It's dino, btw.)

Original poster
lou33 · 05/03/2007 22:26

lol really? i hope it was a good thought!

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SparklyGothKat · 05/03/2007 22:38

Sorry Lou have only just been directed here by misdee.
Ds has had 5 lots of Botox, 4 lots under a sedation and 1 lot under a GA. I did send him back to school the next day because they normally use a light GA.
Ds was unaware that anything had happened, except the last one because he was injected in his hip.
The physio that follows is hard work, DS was put into plaster case following his 3rd and 4th lot which gave a constane (sp?) stretch for 2 weeks.
If you have any questions shout!!

Original poster
lou33 · 05/03/2007 23:16

did he have them in his hamstrings?

when did he start having them, because ds2 is really getting to the upper age limit to be starting botox?

i was hoping you would see this

i managed to get childcare sorted for my middle two the night before, and dd1 can get herself up and out to school on her own, being nearly 15

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SparklyGothKat · 05/03/2007 23:29

Yes he has had them in his hamstrings every time. Your DS will not remember having the injections, its harder for the parents. DS had them done from the age of 4. But the last lot in 2006 didn't work so we are going to GOSH on wednesday to discuss surgery [worried]

Original poster
lou33 · 05/03/2007 23:42

oh good luck with that, will you let me know what the outcome is?

it's something they have mentioned to us, but then they have also said ds will make a good life for himself in a wheelchair, but they changed their minds and agreed to botox

ds is 6 now, so its quite a bit later than when your lo started, but now he is so tight we have to try something

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SparklyGothKat · 05/03/2007 23:46

Botox is a good option, if you don't want to go down the surgery route. Because Ds is quite mobile, but very tight, they have said that if they don't do surgery soon, he will lose his ability to walk by the age of 13, and because he is so active, it would be a shame to let it get to that stage.

Original poster
lou33 · 06/03/2007 13:38

the muscles for ds are so tight he cant straighten his legs enough to stand, so we need to try, or he will soon be permanently confined to a wheelchair

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Original poster
lou33 · 07/03/2007 18:37

big day tomorrow!

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Saturn74 · 07/03/2007 18:44

Best of luck to you and DS2 for tomorrow, lou.

Original poster
lou33 · 07/03/2007 21:10

thanks

middle two are packed off to my sister's for the night, as i have to leave the house for 7am

oldest one can get herself up and out for school in the morning if i wake her as i go

it's been lovely and quiet

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SparklyGothKat · 08/03/2007 10:11

hope everything goes ok today. Where is your DS having them done?

Mitchell81 · 08/03/2007 13:27

Hope it goes well today, Lou

Original poster
lou33 · 08/03/2007 20:00

the royal surrey county hospital, sgk, in guildford

well we went in, he charmed the socks off everyone, had it done, woke up and immediately asked if he could have a go on the ward playstation, he wasnt even out of the recovery room, lol

he was great, and is currently playing with his brother before bedtime

i, otoh am bloody knackered!

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SparklyGothKat · 08/03/2007 21:03

Was it as hard as you thought though? I think I found the GA the worse part tbh.

twoisplenty · 08/03/2007 21:07

Lovely news that it all went well! And I remember that I was far more tired than my ds after his botox!!

Original poster
lou33 · 08/03/2007 21:53

i found the hardest bit going in and seeing him in recovery

tho i also had to laugh at hearing him snore

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Original poster
lou33 · 12/03/2007 12:59

update!

it's day 4 today, i was getting him ready for school and his legs seemed much less tight, i could almost get them straight!

we had an appointment with his physio this morning at his school, which was the first time she had seen him since his botox, and she was really pleased

there has been a better effect than i ever expected, and a lot sooner than any of us thought, so now he can be stretched we need to strengthen the muscles he has been unable to use properly, to get him standing

i'm so proud of him

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coppertop · 12/03/2007 13:31

That's excellent news, Lou. I'm so pleased for you and your ds2.

Original poster
lou33 · 12/03/2007 13:35

Thanks, there hasnt been much in my life to smile about recently, but i am chuffed to bits about this

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