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Please save my sanity

17 replies

Annoyinglyhappyperson · 06/12/2016 15:01

Hi apologies for badly worded thread but I need to vent and ask for any advice you can give me. I have a 6 yr old who is ASD and also has spd. I also have an older 9 year old son who doesn't have any issues. I've moved schools recently as the senco help at the old one was non existent the new one can't do enough for us but my home life has now fallen apart. My younger son is incredibly violent, he always had been and I frequently go into work with bites and bruises on me. Just recently he's been violent towards his older brother. I have to keep his older brother away from him in the evening as if he enters his younger brothers 'invisible bubble' he will melt down and attack him so for his safety he has to stay in a different room. The trouble with this is it's now built up resentment against his younger brother and last night he attacked him really badly. He had had a bad day at school which is his only outlet and his nob dad had yelled at him on the way home for forgetting his blazer so poor ds1 had been through the mill.
I am in touch with ss who told me they can only offer parenting support and not respite constantly in touch with senco and contacted NAS today
Who do I need to grab to get some help as I am now at breakdown point

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WouldHave · 07/12/2016 08:29

Have social services carried out a full care assessment and produced a care plan? If not write to them asking for one under section 17 Children Act 1989, emphasising that this is a serious safeguarding issue in relation to both children. I think they have to do a full assessment within 45 days and produce a detailed care plan.

Does your younger son have an EHCP?

zzzzz · 07/12/2016 12:32

This reply has been deleted

Message withdrawn at poster's request.

youarenotkiddingme · 07/12/2016 21:10

Sorry to hear it's tough.

I can only back up what's been said re care assessment and dla.

Wine
Batterypoweredmumra · 10/12/2016 14:38

I managed to find my autism family support worker who has arranged for therapy at home. I wrote to my GP and she referred him to camhs who have referred him for some play therapy, and coaching at school. Try and find your local Insependent Support for special needs in your area. Their details will be under the Local Offer, and call everyone on there, repeatedly. Good luck.

Annoyinglyhappyperson · 10/12/2016 20:54

We don't get dla because we don't have an official statement yet (long story ds2 was initially pathway tested in reception and came back borderline but has got much worse since so immediately rereffered for testing in new school) the new school class him as asd tho and their autism champion works a lot with him. I will speak to autism champion battery and see if he knows the fsw
Thanks for all the love tho xxx

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Sirzy · 10/12/2016 20:57

You don't need a diagnosis to get dla, it is based on needs not diagnosis.

zzzzz · 10/12/2016 21:01

This reply has been deleted

Message withdrawn at poster's request.

Annoyinglyhappyperson · 10/12/2016 21:04

Oh I didn't know that I always thought you had to have a statement
Will look into that immediately then thanks cx

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Sirzy · 10/12/2016 21:22

You also need to look at applying for an EHCP - or asking school to. If he is getting the right support in school that should help reduce the incidents of school related stress impacting at home

Annoyinglyhappyperson · 10/12/2016 21:26

What's ehcp x

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Andro · 10/12/2016 21:39

An ECHP is what replaced statements (the switch over is not yet complete) - it stands for education, health and care plan iirc.

Annoyinglyhappyperson · 10/12/2016 21:45

Oo thank you xx will speak to senco about this. This is exactly my frustration at the sytem us poor asd mums who have been chucked in the deepest end and have loads of abbreviations and departments quoted to us and were expected to understand it all whilst trying to deal with an asd child

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knittingwithnettles · 11/12/2016 22:27

If school say he doesn't need one, then apply for one yourself.

My son had two schools say he didn't need one, and there was no point etc. He now has an EHCP because surprise surprise they could not give him all the support he needed without one. I had to apply for it myself in Year 8, when he was out of school.

My child was not violent out of school though, only a few isolated incidents in school in primary in playground, so your son's needs are either not being met in school fully (ie he is getting through the school day but it is exhausting for him and he is lashing out when safe at home (google masking) or his needs are much greater than school recognises (ie emotional needs and social communication needs)

Parenting skills are the first thing they will attack you over, but if you can consistently use ASD friendly parenting and he is still violent, that is another piece of evidence. Tony Attwood's Aspergers Syndrome and Explosive Child are helpful books. Out of Synch Child is another good one.

Another thing to ask school is whether ds is being seen by an OT at all for strategies to reduce the violence? They could suggest all sorts of calming activities if his trigger is stress related, sensory related. You really need to push for this, it makes a big difference. Hopefully that is part of the therapy they are suggesting for him? If it is play therapy only, it may not be enough.

I found if I told my child off for bad behaviour or used time out in a reproving way it was incredibly destructive and escalated tantrums or refusals, whereas understanding why they flipped (wrong texture food, tired out, toy needed to be in right place, wrong phrase upsetting scary (Ds2's trigger phrase was Coraline Shock that was enough to start him screaming, and ds1 unfortunately used to taunt him with this, even though they had never even seen the film)

Soothing activities for ds2 were outdoors, running climbing, nature, dressing up, soft toys with "characters" (one was called Lewis Hamilton) cars to stim with make whooshing noises, long baths with bubbles, and no time pressure, helping him dress, helping him put shoes on, deep pressure, bedtime routine, small tidy bedroom with familiar things all around, no demands (easier said than done) trains trains and football stickers

Triggers were team games losing games wrong food, favourite programme not allowed (best to do a lot of preparation before switching something off in our house, never a punishment) wrong phrase (one of ds2 most hated phrases was This is not appropriate) being left out, unfamiliar routine, waiting in queues, waiting for anything, handwriting, homework which he couldn't do (we scribed everything for him past 6)

HTH

knittingwithnettles · 11/12/2016 22:30

oh sorry I see he is already diagnosed with SPD so you probably know everything I've written about triggers, apologies.

Ds2 really needed a special person to take him on walks occasionally, spend time with him 1:1, and it didn't have to be trained person (in this case it was just his Dad or a kind elder cousin) so I hope the DLA can make some difference on that front, you certainly sound as if you deserve to get it.

knittingwithnettles · 11/12/2016 22:34

Parenting support from SS although frustrating, may be a good way to tick that particular box for the EHCP and convince professionals you are fully engaged, even though what you need is respite. Sometimes they do offer good strategies, even if they can be bloody patronising!!

Annoyinglyhappyperson · 12/12/2016 01:06

Spoke to senco on Thursday as there is another boy in school who receives respite but had a different social worker so she's going to try and find out how he got it. We go to ds's ot about every 2 months we have a delay in his sensory profiling report because of change of schools but the ot has been amazing it's so amazing to talk to someone who totally understands and doesn't think you're this crazy Mum. I cancelled the social worker visit I was due to have on fri. I know this was the wrong thing to do but I'm suffering awful anxiety at the moment with everything that's gone on and I just couldn't cope having to explain our story again having done it so many times in the past few weeks. The senco has been supportive tho she's my main help and is fighting our corner. Ds1's teacher has been amazing too and there is a local charity that offers respite holidays that she works with that she's going to ask for help from for him.
Positive baby steps xx

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Annoyinglyhappyperson · 12/12/2016 01:07

My family have also stepped up a bit and offered to help a lot more I think they realise I'm at breaking point

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