Bl**dly T***sers (sorry about that )

[mieow]

The bloke from SS has just left, he let me read the reports he
recived from the GP and the hospital, the hospital one wasn't too
bad, just saying that DD1 needs help, but the hospital one was
bad, it said that DD2 had scratches, "reportly" done by DD1,
that she was running around barefoot, that is true she took her
shoes off, but they then said she was had a dirty face (emm.... they
fed her) dirty clothes (not true) and her feet were covered in mud
(BOLLOCKS!!! if they were it was because their floor was dirty!! ) I
am so angry!!!
The man was very helpful and he understands that the sitution at the
hosiptal NOW!!! but my god!!!
He witnessed four tanerms of DD1, in the space of an hour!
I am so angry so can't type much at the mo,

jimjams my mums friend gets respite for her daughter who has retts. There are ways of wangling the system apparently. I will ask my mum to ask her

lol heart I have my best DLA type scenarios ready. It won;t be hard I am dreading this summer

Thanks Fio2 that would be helpful.

also caroline5 gets it, i am sure she wont mind me saying this. So if she reads this I am sure she will tell you how she got it

Sorry I keep posting little replies but my mums friend HAS to have it else she wouldnt get any holiday or anything. I am sure you understand this. It is a lifesaver but she had to wangle it iykwim

Good Luck for tomorrow Jimjams - I hope you get all the help you so clearly need and deserve.

Let us know how you get on....and remember, try and come away with at least one thing on your wish list, other people do, why shouldn't you? xx

Hi, we did get respite from a children's charity for about 6 months, but it was withdrawn as dd2 was "not severely disabled enough". When I asked why we had received it in the first place, they said they had felt sorry for me!! Tbh, I don't think we really met the criteria for it (terminally ill, life-threatened or severely disabled) and were pretty lucky to get it at all, although dd2 does have severe learning difficulties .

If it's any help, we were referred to the charity by our community nurse - it was her idea. She is part of the Learning Disabilities Team (NHS) based locally - if you have anything similar, they may be able to help.

There is now nothing else available locally for respite as far as I can make out.

Jimjams - did you see SS on Friday? How did you get on?

hmmm- the SW was quite good surprisingly. She seemed to understand the issues (maybe helped by the fact that she has a friend with an autistic child). Now I think we need further assessment. I can't see anything being organised for this summer so they may have to cart me off by the end of it.

Why does everything have to take so long? Assessments to see if you need an assessment.... waiting for funding, waiting for places, waiting for post to be filled etc etc. Sorry, not in the most positive frame of mind today re: services/help/support.

Ridiculous that you should get no help all summer. I know you'll be shouting as loud as you can so don't have any advice. Just hope somebody listens .

jimjams, I asked my mum about her friend and unfortunatley I misunderstood. She has to pay for her daughters respite and they have to travel 20 miles for her to have it. Sorry I am so useless! My grandad got it though but this was arranged through SS and I dont know if it applies to children, so sorry! hope they sort you something out soon