Letter from Consultant

[jenk1]

From dd,s consultant-the nice one

he says that he,s sorry that DD,s MRI scan hasnt been arranged but that it requires heavy sedation and some side effects and that he doesnt want to put her through it.

He assures us that he is not avoiding investigations, but that he,s not convinced that she needs it because of how she,s developing.

He says at the end of the letter "I personally feel that we should not put her through this"

And we feel the same, we were having doubts about the MRI, he has already said its not going to change her dx of Hemiplegia so we agree.

Its one less worry off our mind.

Jenk1- im not familliar with your DD or you r situation but my son had an MRI some time ago to try and find an underlying reason for his Infantile spasms and it was awful having to starve him and watching him have to have a heavy sedation....it was just horrible.

i didnt realise that you had to starve a child for an MRI, im so glad that she,s not having it now.

Did you find out what was causing your sons infantile spasms?

Yes, he had to be starved so that the risk of vomiting with the anesthetic was less. I couldnt go in and watch him be sedated,i can put up with alot but not that.

It needed to be done though.

my sons MRI was normal however he was later dx with Williams syndrome. WS and IS dont normally go together but trust my son to be 'different'.....!