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ADHD and Gluten Free Cookbook - has anyone got it and what do they think of it?

9 replies

Nattynoos · 31/01/2007 19:23

Hello all
My DS has ADHD and i was wondering if anyone has bought the ADHD and Autism gluten free and milk free cookbook.
I would just like to know if it is worth me buying it but i thought i would ask here first to see if anyone has got it and what they think of it.
Has anyone got any great recipes that they give their children with ADHD if so could they let me know?
Many thanks

OP posts:
luckylady74 · 31/01/2007 20:59

Hi Nattynoos - I'm just jumping in with you because i started my son on a gluten free diet yesterday and i'd love some advice too!
my son's urine was analysed by the sunderland uni autism research unit and they said he should avoid gluten. Fine so far - ds ate the toast and the tescos free from fishfingers, but he loves to have treats like fish and chips and even dare i say itmacdonalds - we also brave the odd cafe on a good day ( but only if we have our 'out of order sign for the toilets) - what do other mum's order?

mom2asd · 31/01/2007 21:03

We have been gluten and casein free for over 2 years. It has made a world of difference in my son. There are several message boards on yahoo.com that are dedicated to gfcf diet. one is gfcfkids

I have several gfcf cookbooks. After being on the diet for a year and 1/2 we ended up having my sons IgG food allergy, IgE fod allergy, and peptide test done. He had allergies across the board and we didn't even know it. His throat was not closing up eating these foods so we did not know he was having a reaction. He now has 16 food allergies that we have had to take out of his diet, but honestly he is now sleeping, eye contact is perfect, he is talking, reading, and socially he is doing great all after starting the diet. He is 4 years old now.

There is a book I ordered from america by a woman named Lisa Lewis i believe her website is www.gfcfdiet.com

luckylady74 · 31/01/2007 21:14

thanks mom2 - i hadn't even considered other allergy tests before - i'm going to see a private nutritionist tomorrow so will ask her about that. what was your ds1 like before and do you attribute the change entirely to diet?

mom2asd · 01/02/2007 03:20

Here is my sons background. And this will have to do with a vaccine autism link so please do not blast me, hear me out. I understand many people on this board think that there is no connection.

He was born perfect and normal, met all milestones and did many physical milestones ahead of schedule. He was constantly sick as a baby, ears infections all the time, tubes at 7 months old and 2 more sets over thenext 3 years.

He had a reaction to his 9 and 12 month vaccines. Lost eye contact within a week of his 9 month and appeared deaf and stopped saying the few words he could say after his 12 month shots. After getting involved with a lawyer who researched his vaccine lot numbers we were told that he was given over 280 times the safe amount of mercury in his vaccines alone, over 32 times the safe amount of mercury from his first shot alone.

Mercury supresses the immune system making one septible to just about anything. My son had chronic respritory infections, ear infection, constipated then had diarrhea then constipated again. He was always going to the doctor for something. He was over antibioticed and ended up having yeast infections in his tummy confirmed by medical labs. When he was 2 we had testing done to see if he had developed any food allergies because the only things that he would eat were breaded items and milk/cheese items.

When we put him on a gluten casein free diet when he was 2 without testing for allergies. He gained eye contact, stopped head banging on the walls, and started to babble again, but not talk like he was doing. He had 3-4 words before he regressed in language.

Over the next year and 1/2 we did many tests including test for mercury toxicity and sure enough his body is so toxic in mercury, aluminum and lead his pediatrician couldn't believe that he was alive. Instead of doing a urine metals test after chelation which shows what the body is pulling out, we did a test out of Paris France that test the porphoryn levels inthe body we found out that his BODY was indeed toxic. Porphoryns will tell you what the bodys burdon is with heavy metals. It tells you the exact level of metals in your body and if chelation is needed.
www.labbio.net/pages/autisme_envir_intoxication_eng.htm
also this link www.labbio.net/pages/index_vh_eng.htm

We did hyperbaric oxygen therapy to help with inflammation in his brain which was detected by a SPECT scan. Everything we have done with our son has been proven by medical labs, not just guessing here and there and following a band wagon of treatments. This is really happening in many many kids with autism.

back to the food allergies:
His IgE levels were fine but his IgG food allergy levels were in the red zone. His peptide tests showed that he was not digesting the proteins gluten and casein. We had food allergy testing done on my younger son and he showed that he was not allergic to anything.

Back to mercury and autism:
There is proof that mercury fillings can make you mercury toxic just by breathing.
www.iaomt.org/smokingtooth.cfm

There is also proof that if a mother is mercury toxic and pregnant, the mercury mutates the DNA making the fetus mercury toxic b/c the mercury becomes part of it's DNA/genetics. This could be a reason why some kids react to the mercury in the vaccines the way that they do. I know that I had a mouth full of metal growing up, had more filling than you can imagine from eating too much candy, even swallowed one when I was 9.
pubs.acs.org/cgi-bin/abstract.cgi/j.../ja065552h.html

pubs.acs.org/cgi-bin/abstract.cgi/j.../ja056354d.html

pubs.acs.org/cgi-bin/abstract.cgi/a.../ac050727b.html

My son did not have food allergies or signs of food allergies until his mmr shot. I have a younger son who was not vaccinated until he turned 2, at 2 we decided to give him 1 vaccine a year and start off with the Measeles vaccine, not MMR, but single measels. He broke out into a mild case of the measels within days and then had chronic diarrhea with undigested food coming out. We then had a food allergy test re done on him and he has 13 food allergies.

This is a very informative website of a place that we do most of our testing. You do not have to do testing through them. You can print out the information and give it to your doctor who may be able to do it locally. It took us a while to find a doctor that didn't have his head stuck so far up his mainstream medical rump, but we found one.
www.greatplainslaboratory.com/

It's very late. I need to get to sleep. Sorry for such a long post!

mom2asd · 01/02/2007 03:27

""what was your ds1 like before and do you attribute the change entirely to diet? ""

I'm sorry I missed this question. Before the diet he was non responsive to everything. No eye contact, constantly spinning his cups, rolling wheels on trucks instead of playing with them, starring at the fan a good bit of the day, no interaction with us or anyone else, no hugs, no kisses, not much of anything, woke up 5-6 times a night for over a year.

After the diet his eye contact was a complete 180. He couldn't stop looking at us. He started playing with toys and interacting with other kids in his daycare. Lots of hugs and kisses, sleeping was great only waking up once if that, and he seemed more "with us" mentally instead of so distant in his own little world. The best way I can describe it is that he wasn't in his own world anymore. We did many other things repairing the medical side of his autism over the next 2 years and even now we are still doing supplementation and diet but he is very much a common little lad that will grow up to live a happy independant life. I still worry about the bullying but that is a good ways from now and he has a lot to learn in the meantime. I'm glad to get suggestions on how I can start teaching him about that now and hopefully it will carry over.

BagLady75 · 01/02/2007 16:08

Hi,

We have been doing GF/CF (also no soy) for 6 months now with DS who is 5 and has ASD. Very promising results so far - he is much more alert, verbal, better eye contact.

¨Personally, I have not found the specific GF/CF cookbooks all that useful. I have mainly been cooking meat & fish, fruit and veg, mediterranean style with no butter, lots of rice, and the occasional gluten-free product like sandwich bread or pasta. I find that simpler than a fiddly recipe for fake fish fingers, but maybe that's just me (and maybe I am lucky that DS is not terribly fussy).

I did buy an ice-cream maker and I make sorbets all the time (very easy). For a treat I bake meringues.

Anyway, best of luck with the diet - I think it is really worth a try, and it is not as hard as it seems at first.

saintmaybe · 01/02/2007 21:45

Hi,
Ds2 has been gluten/casein free for about 3.5 years now - he's 8 - and it made a huge difference to him within days; more 'present', more eye contact, easier for him to listen. He's very self-restricting in what he eats, and so I've found books less helpful, except for specific things like fake buttercream for cake filling, but there are loads of recipe ideas and ways round things that he can't have any more. We've found 'hidden' gluten in things like ketchup and cornflakes have caught us out,but however much hassle it is it's been so worth it.
Most helpful thing I was told was that the cheapest Argos own-brand breadmaker works really well for gluten-free bread; it does.
I've lent my cookbook to a friend, but if there are specific recipes you're after I can have a look and post them when I get it back.
Good luck

mom2asd · 02/02/2007 02:43

i was able to print many recipes from www.gfcfdiet.com in addition to buying cookbooks. You can hole punch the paper you print it on and make your own cookbook from the recipes on the website if you had to. It has been great learning how to cook with these recipes so that I could make them "my own" and transform them into things that he will eat.

My son like crunchy foods so one way I get veggies into him is by battering them in rice flour and frying. Such as squash sticks.

I also make a homemade jello with uncooked veggies and fruit. I blend carrots, squash, asparagus, and other veggies in with bananas, strawberries, and raspberries. Add a bit of grape juice to the mix to make it more liquidy. I take 3 cups of the blended stuff and put it in a glass bowl, add 2 packs of gelatin, honey, and Xylitol (because my son doesn't eat any sugar other than it's natural form) put in cooler and in a few hours you have jello with more vitamins and minerals you can imagine they would ever eat.

mom2asd · 02/02/2007 12:58

2Shoes:
there is a conference being held next Friday regarding hbot (hyperbaric) with Dr. Phillip James who works out of Dundee University. treatingautism.com

Also here is another link for his info. It may be something to look into if you are thinking about learning more on hyperbaric.
shsskip.swan.ac.uk/Information/HBOT.htm

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