Hypermobility....new diagnosis

[slightlymad]

Hi I'm new to these boards and have just spent the past 4 hours reading through loads of your posts!
My son has been diagnosed recently with hypermobility. He has this along with many other health problems including heart defects, immunodeficiency, verbal dyspraxia etc etc!
Anyway - I'm really looking for information and support with the hypermobility. He has lots of pain in his legs and feet and yesterday was fitted for Piedro boots. I believe he will get these in about 3 weeks. I was really quite amazed and taken aback when they said he needed these boots - and am still not 100% sure what they will actually do for him??? As far as I am aware they are 'just' Piedro boots, as in, no special inserts - although I have phoned today about this because I was really not sure what to ask yesterday!
I was told he is completely flat footed and that his ankles roll over very far. They said this in turn affects his knees - and then his hips (He has a pelvic tilt as well) and that this then affects his spine. Will these boots really help to correct ALL of this?
When he walks he has 'floppy' feet and he frequently trips over his feet as they catch on the floor. He gets pain in his feet and needs carrying a lot.
He already has a major buggy due to his other problems so that helps out greatly!
Looking forward to hearing about any experiences any of you have with this!

my dd2 is flat footed, and her ankles roll out. in fact some days she is standing on her ankles when she is stationary. she has a rather wobbly walk, but just picks herself up and carries on. she isnt dx with anything yet as see paed on 28th. does this sound like hypermobility to anyone?
but she also sometimes seems very stiff. it is hard to get her to bend to go into chairs, car seats etc. arrrrgh. just wish we knew what is going on.

tinker i wonder that about myself. my ankles are very weak, have been told to stop going dancing, not alllowed to do long walks etc without proper ankle supprt, as after years and years of falls my ankles muscles are so lax they just dont support. i suffer musclular pain a lot, wrists ache a lot pof time, legs ache when walking and feel very heavey in the muscles at times.

This is the website for the condition I have, it may be of help.

I think I should clarify a bit what I meant about the trampoline. Trampolining is not bad for the muscles but for the joints. The muscle aching won't cause trouble in itself, although not very nice, but the effect it has on joints that are already unstable, which causes the real problems.

With regards to muscle pain, sometimes this is not felt until later in the evening, when the daily activities are over, so stopping when things start to hurt is good, but not always in time iyswim.