So now they are listening..........

[jenk1]

Got a phonecall from dd,s early years specialist health visitor, she had read the report from the CDC and suddenly she has sat up and started taking notice.

She wants me to put dd on the waiting list to see the ASD Asessment team that usually see children from our area, (we go to another NHS hospital after we fell out with the CAMHS people over their treatment of dS)

So i told her that i knew that it wasnt necessary for dd to be under this particular team that she wanted us to put her in and she said that she would have to be seen eventually by the other hospital if we wanted the LEA to statement her.

So i asked who was on this asessment team and she said some names and then she said the name of the psychiatrist who refused to dx DS last year (she has backed down now and allowed him to be dx,d).

I started feeling anxious and told her that i would have a think about it.
Thing is, she,s had an asessment at the CDC in Nov last year, so why does she need another one over the other side?

This could be delaying tactics me thinks, was wondering if anyone else had been in this situation.

TIA

Hi Jenks. Glad to hear about the dx for DS although I can't really offer an answer to your question. However, I read with interest about you moving to another hospital, because as my DS (ASD,OCD and severe behavioural probs)is refusing to go to any more psychiatric sessions at our local dept, they have said that they will have to discharge him. He is only 11 and has been going for 3 years and one of the therapists has just told me that his problems are caused by my 'poor parenting' - which completely devastated me. Hope you don't mind me asking, but how did you manage to move to another hospital?

TIA

Scooby

hiya scooby

We fall in between 2 NHS areas and as we live right on the boundary we are permitted to go to either, when we had trouble with DS at the first hospital/CAMHS we decided that we werent letting DD go to this hospital but that we would try the other one.

The 2nd one is so much better that the first but the first NHS comes under the same area as the LEA and they have a very very cosy relationship as we found to our cost with DS.

I think you can actually request to see another consultant nowadays from neighbouring hospitals, could you do that?

Last year the clinical psychologist hinted that DS problems were down to our parenting and "arranged" a 6 week parenting course for us.

So.......... i telephoned her and told her that we would not be attending any parenting course, that we considered ourselves good parents and that if she had a course to parent a child with ASD then we would attend that, then we went private and got DS, dx and sent a copy of it to her.

We have finally got an NHS dx for DS after we wrote to the Chief Psych who wouldnt dx him and we informed her that we knew she hadnt carried out procedures properly and would she like to explain herself, queue an NHS dx 3 weeks later.

Hi Jenks,

Thanks for your reply. I am not sure if we could go to another hospital, but will perhaps look into it. In one way, we are lucky because we have already got the dx and as he is fine in school (saves trouble/anxieties up until he gets home, then has a meltdown) we don't need it for statementing. However, am at a loss due to being labelled as a poor parent and just have no idea what to do next, if anything.

Take care,
Scooby