I just wanted to make a quick thread that might be helpful to any parents who have a child with incontinence secondary to Spina Bifida or any other spinal problems and are looking to apply for DLA. We applied and were rejected 4 times before we were awarded it this year, and I found very little/no help online from anybody who was in the same boat as us so I figured this might help someone. Even if it is 1 person!
My daughter is 5 and was born with Spina Bifida. As a result, she is completely incontinent of urine (wears nappy 24/7 including at school and I catheterise her 3x per day) and has lose anal muscles (although she manages to stay mostly continent this end) BUT can walk/run as normal, which is why it has been so difficult to get DLA. A nurse at our hospital suggested the DLA to us, mainly to cover the cost of electricity and water used from having the washing machine and tumble drier on 24/7 (her clothes get very smelly from wearing nappies and she can get through 3 pairs of trouser some days if she leaks).
Is anbody stuggling with a situation similar to this? Because now we have been awarded, I would love to help anybody else who is struggling! Especially as I have NEVER found another parent whose child has Spina Bifida and is purely affected by incontinence, not mobility.