Sleeping and cerebral palsy

[bobalinga]

Or rather, lack of it! Dd has severe CP and is visually imapired. She's nearly 3. She used to sleep the night after maybe an hour's crying to get to sleep but recently she is falling asleep after several hours of crying and then waking at 1 or 2 and yelling till 6. She doesn't seem to be in pain - I think she's overtired and not coping with being awake and really wants to be asleep. I've given her temazepan syrup a couple of times but its highly addictive and isn't the answer.
i know most kids with CP have sleep issues so I'm hoping for some tips. She's completely unreachable when she is yelling like that. Nothing calms her.

My dd1 (now 12,cp moderate spastic diplegia,used to have real problems sleeping when young, it was a nightmare to get her to sleep and she would wake easily, she too did the the waking at one and screaming the rest of the night.We took her to a cranial osteopath who said she was in pain only lying down and also was only going into a light sleep.It did make a tremendous difference and not just on the sleep front, on the way home she touched her feet for the first time ! She saw the osteopath from about 20 months til about 10 years old. We went frequently to start with (every 2 weeks)and gradually less often.when we first started going it was mentioned to the paediatrician and he was supportive of the idea.

I thought about cranial osteopathy but I'm scared of seizures. Dd had infantile spasms (they started during CO when she was 3 months old) and she now had very infrequent epilepsy.
Some people say avoid CO, some say it doesn't cause seizures.
Poor little lamb is upstairs now for a lunchtime nap, desperatly tired but screaming her head off and has been for an hour. I feel like this will never end :-(

I know children with fits who have cranial osteopathy, dont think any of their paediatricians have been worried about it. But you could ask yours what they think.