My 20m old daughter has West syndrome ( epilepsy causing brain damage/ development delay). She started nursery 2 days a week in September, they know all about her condition and that she sees neurologist, community paediatrics and Snowdrop for brain injured children. As far as we are concerned she is making fantastic progress, just started to walk and is chatty and interactive. We were referred to Portage by the paediatrician but having sat on the endless waiting list for 7m we discovered she doesn't qualify because she goes to nursery.
On Friday my DH was handed a sheet with no explanation, which is a copy of an EYFS assessment, placing her at 'emerging' skills for several of the 8-20m criteria, with no scores in the 16-26m bracket. I have looked up the criteria online and totally disagree with the assessment, since she can do everything in the 8-20m bracket and several of the 16-26m things. We have asked for a meeting with the SENCO and her key worker, but I don't know whether to challenge the assessment or to accept it and use it to get more some help. Currently she does a Snowdrop program which we pay for, baby signing classes and we attend some special needs playgroups. We have had some private physio sessions but don't feel that's needed at the moment. I feel so let down by the system that seems to think it's ok to mark a not-yet-2-yr-old as 'failing' without taking into account the steaming heap of crap she's been through or offering any actual help!
Any advice on where to go from here much appreciated.....