Think we,ve finally got it

[jenk1]

dont want to get too excited but

got a letter from DS,s original psychologist this morning, she was writing to the LEA to put her evidence towards DS,s statement.

The final paragraph says

In my opinion, M,s high levels of anxiety,his obsessional behaviours and rigidity with respect to some daily routines (particularly eating habits) are due to pervasive developmental difficulties which are likely to persist.

Now im not well up on pervasisve development disorder, but am i right in thinking that this DOES cover ASD?

And if so, if this is an NHS dx, then....................................................................................

oh my wordy pants

PLease can someone put me out of my misery and tell me if im thinking along the correct lines?

TIA

Sounds like a step forward jenk. I've no idea about PDD but at least she's acknowledged there is a cause for his real anxiety and used words like "pervasive" and "persist".

Where are you up to in terms of getting a named school placement?

a friend has a daughter with PDD, its officially on the spectrum- round here its above AS actually.

WOW!

(by above, I mean more severe)

Just had confirmation from our private psych in his words "these words are the door to opening Nirvana" and

Pervasive developmental disorder

=

Autistic Spectrum

YAY.....................................................................................

After almost 2 years of DS first being suspected, fighting for school to acknowledge him as SN, being accused of having MSBP, DS having a mental health breakdown followed by myself and then DH and finding out that DD is ASD we finally have our dx.

A very very bittersweet moment for the jenk household.

Now guess who,s rubbing her hands at the thought of the next meeting with the LEA HAGS

hope doors start opening for you and your son now

I am so glad for you Jenk. Do look after yourself though- remember I was in your place not that long ago, and I still ended up with severe depression (GP says was post traumatic stress disorder) after the DX. I knew it, I wanted it but it still hit me hard.

How does DS feel about it all?

I agree dino.

I fought for over 5 years to get the right dx for dd, felt elated, then spent a fortnight sobbing my heart out and still have the odd cry now and again.

Although have to say it saved my family getting the dx. Things are so much better then they way before we knew. The not knowing was far worse IMO

HUGS as I know you too have had an awful dx journey like we did ! xxx

I told DS that we had received a letter from his original psych saying that she agreed that he does have ASD.

He just shrugged his shoulders and said "So what i am AS, so what if she says she agrees"

And that was that.

Our psych has just been to visit DS and us and has read the letter and has pointed out to me that the NHS Consultant has even endorsed himself as being involved with DS from now on, he said thats really good as it says to the LEA that himself and the NHS are in agreement with regards to Ds and that they are happy for him to take over.

WOOOO HOOOOO

Then i showed him the letter from the boss of CAMHS who stopped DS from being dx,d earlier this year and he said its the biggest climb down/creeping letter he has ever seen written in his life to parents by someone as powerful as she is.

WOOOOOOOOO HOOOOOOOOO

Sorry, im just so pleased that it all seems to be coming together now and that the LEA will have to listen to us, they have always thrown it in my face that DS is NOT ASD and that they cannot offer him the help that a boy with ASD should have.

Ive now got to write to the primary school that the LEA want DS to go to and ask them how they are planning to effectively meet his needs, the headteacher made it quite clear that she doesnt want DS at her school, well thats fine cos we dont want him to go either.

Jenk, been following your threads - so glad youve got a result, and hope you can find a school that does want your son - who wants a school that doesnt want SN kids? In my experience, the ones that act snotty like that are not much godd with anyone that varies from their perceived norm. Take care tho - look after yourself

Oh yes, would echo Fubsy- unless you want the shite we've had from our lot.