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Quick help re: eating problems

2 replies

r3dh3d · 05/12/2006 18:27

Background:

DD1, 2 1/2. Fairly restricted diet for medical reasons but eats OK. Some texture issues but nothing major. SLD so no possibility of reasoning with her, understanding v limited, social not advanced enough for negotiation. Sticker chart would only add dietary fibre. On the up side doesn't misbehave for attention.

Over the last 6 months has become an erratic eater. Will eat a given food one day but not the next, then eat it again the following day.

Over the last few weeks has become more and more restrictive, refusing key items in her diet. We are almost at the point where all she will eat is toast (nothing on it) and weetabix. I can see no logical reason why she should continue to eat even these. She seems impervious to hunger. She already had various mineral deficiencies and she HAS to eat regularly to get some of her Epilepsy drugs down her, or else she will go into status and it's curtains. I've been toughing it out up to now, saying we shouldn't pander to it or it will become behavioural - but I'm starting to panic.

Has anyone had similar problems? Is there anyone out there who specialises in eating disorders in SN kids? Our Nanny has dealt with this with some sucess in the past with ASD children but is baffled by DD1. We're queued for the learning disabilities nursing team, but our contacts there are baffled too. Who can I turn to?

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FioFio · 05/12/2006 19:15

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r3dh3d · 05/12/2006 19:54

We have an excellent paed (we have a wide range of consultants to choose from so we should find one good one, really) but he's really hot on epilepsy not the learning disability stuff - don't know if he'd know who to refer to. Do you mind me asking the name of the dietician you went to and where they were? We have a dietician at GOSH but she's a metabolic dietician and doesn't deal with this sort of stuff.

Re: weight loss - I guess we're down from 91st centile to 60th. Is that going to be enough?

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