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Here are some suggested organisations that offer expert advice on special needs.

First CDC appointment next week

12 replies

HHH3 · 23/09/2015 22:29

I'm getting increasingly anxious. My biggest fear is that they'll take one look at him and say I'm an overprotective mother and there's nothing wrong with him.

He's 2.9 and is my DS2. What are they likely to ask me? Do I need to take SALT reports and Drs letters that we have so far? What do I say to them?

Feeling a bit lost with it al tbh.

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2boysnamedR · 24/09/2015 21:51

I never went via a CDC.

For my third boy I didn't need to say anything. His SLT practically diagnosed him out the blue one day.

Look at the triad of impairments and think about each area.

When I had a private appointment for my older boy the doctor asked me if he ever gestured- did he point, or make facail heaters to express his feelings. I said a honest "no" then 30 mins later he pointed at the click and rolled his eyes at me! Good time to aquire those skills!!

If you need any punters to the triad let me know

2boysnamedR · 24/09/2015 21:53

Heaters = gestures
Click = clock
Me = dyslexic Wink

HHH3 · 25/09/2015 13:44

Thanks 2boys. I don't think he has ASD so would the triad of impairments apply to him?

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2boysnamedR · 25/09/2015 18:24

What do you think is wrong?

Yes take a your reports, different departments don't talk to each other from my experiences.

My older boy has dyspraxia but I always suspected ASD so looking at the triad helped us as he is missing a key trait ( but I wasn't trying to disprove asd, I was shocked really he wasn't diagnosed with it but it helped rule it out).

I have experienced both extremes with my sons. Older boy no one will except he's any less than neuro typical. The younger one was diagnosed really without me having to get involved.

2boysnamedR · 25/09/2015 18:26

Sorry - of course nothing is "wrong" sorry bad turn of phrase there. Ykwim. What are the concerns is better

There's nothing wrong with your child Grin there's nothing wrong with mine either

HHH3 · 25/09/2015 18:41

It's ok - ikwymGrin

I'm not entirely sure. My gut says it's something genetic and I have a particular syndrome in mind. But I'm no expert and could be way off the mark.

Will take any reports I have. If nothing else it will help me if I need to refer to things.

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2boysnamedR · 25/09/2015 20:36

Has your pead looked for genetic things? My boys have a unique genetic issue and she asked for the tests. I mentioned their midline defects but she was thinking fragile x

zzzzz · 25/09/2015 20:39

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Message withdrawn at poster's request.

HHH3 · 25/09/2015 21:07

This will be the first time he's seen anyone about everything as a whole. He's under SALT, paed for his breathing and ENT. But he was referred to the cdc in feb and this will be his first appointment.

I'm not sure them saying it's parenting would be a good thing. He's not my first and I know its not something I've done/haven't done. I've known there's something different about him since he was a baby. It's only now that anyone is starting to listen. Not that I want there to be something 'wrong' with him. But I trust my gut and it says there's something going on.

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zzzzz · 25/09/2015 21:15

This reply has been deleted

Message withdrawn at poster's request.

2boysnamedR · 25/09/2015 21:23

Zzzz I would love a quick fix too.

I'm still waiting for them to snap out of or some amazing help that's coming.

It sucks knowing things isn't as it should be and finding out your right.

HHH3 · 25/09/2015 21:45

Sorry zzzzz - I misunderstood.

I think it's actually my greatest fear that I'll be told it's my parenting/I'm overprotective/overreacting etc. I've had to fight to get so hard even to this point. And if they dismiss my concerns then I'm left trying to support DS without knowing what I'm dealing with.

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