I had a joint orthopaedic clinic appointment for himtoday, to assess his potential for botox and possible multi level surgery. For those of you who dont't know ds2 is 5.5 and has spastic diplegia cerebral palsy, he uses a wheelchair.
There has always been hope that he will be able to do some walking eventually, even if only for small distances, with sticks, but as time has gone on and he has become schoolage, he has got tighter and tighter in his legs, which is a hard one to rectify, as he spends a lot of time in a chair at school, and needs 8 hours stretching a day to make a significant improvement they think. This isnt feasible.
Anyway we went to the clinic to talk abotu the botox jabs etc, and the doctor said to me " i think he is one of these little boys who is going to do really well in a wheelchair, and will achieve good things that way", which is a kind way of saying they dont think he is ever going to walk, isnt it?
They have agreed to try botox tho, but he said he doesnt think it will have much impact, but it wont make him worse
I'm upset.
Plus it is probably going to be done in april, and my OH is leaving the country for good on the 4th of that month, so i will be dealing with it alone.