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SN children

Here are some suggested organisations that offer expert advice on special needs.

hello lovely mums of SN children can I ask your advice please

20 replies

Yorkiegirl · 24/11/2006 19:44

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Jimjams2 · 24/11/2006 20:26

Not mad, from the description it certainly sounds possible (other things like dyspraxia, or sensory integration disorder would be possible as well). It's difficult to do much though if the mother doesn't suspect anything Apart from the noise sensitivity how is he coping with school life?

Jimjams2 · 24/11/2006 20:27

You could suggest AIT to the mum if noise sensitivity is the main problem. It's not used solely for ASD - its for noise sensitivity.

Yorkiegirl · 24/11/2006 22:36

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Blossomhill · 24/11/2006 23:10

JJ ~ very interested myself as dd is very noise sensitive!

Jimjams2 · 25/11/2006 07:46

these are a big AIT provider there are lots of others though, so worth just googling AIT, UK and autism.

If she's not ready to hear anything it's difficult to say very much. You could try "I was talking to somone who said that her child was very sound sensisitive and she found that AIT really helped him" It doesn't have to accompany autism, but when she starts searching she'll find a lot out there realted to autism- you don't have to mention that though iyswim, just stick to sound sensitivity (especially if someone just "told" you iyswim).

Jimjams2 · 25/11/2006 07:47

here's the NAS info . We used Stella Waterhouse. She sends the equipment so you can do it at home, and is far cheaper than many of the other providers. She's absolutely lovely as well.

Davros · 25/11/2006 09:18

I know some people who believe that AIT made their (ASD) child's sensitivity worse! and many who think it made no difference..... and some who think it helped. I know I always flog this option on MN but I would also look at thelisteningprogram (look under products).
You get contact with a UK consultant and they offer advice and support specifically for your child. I'm sure I bought mine in the UK but can't remember now....

Davros · 25/11/2006 09:19

Oh, and by the way, she obviously has some concerns so maybe just talk to her about the noise sensitivity without mentioned the "A word". Could you ask a member of staff in confidence if they have similar worries at the school. Really the school should be doing something.

Yorkiegirl · 25/11/2006 22:15

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Jimjams2 · 25/11/2006 22:41

auitory integration training- trains the ear to shut out the loud noises and cope with background noise. There's an excellent book about it, by ??? anable stahl??? Her daughter Georgie was severely autistic "cured" by AIT. She could hear toilets flushing in flats 3 doors away.

DS1 can hear the microwave go on in the kitchen when he's in the front room- we have a large victorian townhouse. IN fact If I want to find him rather than walk round the whole house looking I've taken to turning the microwave on. He loves the sound of it at the moment- other times he can't bear it, if that makes sense!

Yorkiegirl · 25/11/2006 22:43

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Jimjams2 · 25/11/2006 22:44

more info - and it mentions the books!

Davros iirc it;s the listening program that stella hires out. Could be wrong though, it was a few years ago now. I remember kind of swirly cd cases. Although could be imagining it!

Jimjams2 · 25/11/2006 22:46

stella waterhouse btw has used AIT with non-autistics- so could maybe be easy to approach without her whole autism label thing iyswim. He number was on the NAS thingy - if you want me to give her a ring just CAT me, would quite like an excuse to catch up with her anyway.

Davros · 26/11/2006 19:03

The Listening Program comes in a lovely black binder with lots of info and the CDs themselves DO have a swirly pattern on them. Its based on Tomatis and seems quite plausible but harmless too. You can also use it again and again and on lots of people (I have always planned to do it myself.....)

Jimjams2 · 26/11/2006 19:21

Sure it's the same one. Tried to persuade dh to do it (he can't bear open plan offices!).

sphil · 26/11/2006 21:46

Ooh, I'm quite keen on this - for both boys. We actually have a Tomatis centre in Lewes - would you recommend this or the Listening Programme? Or are they basically the same? I admit I'd quite like something we could do at home. I'm a bit nervous about making DS2's noise sensitivity worse - he's much better with traffic noise atm, though he still puts his hands over his ears for loud singing, screaming or crying.

Jimjams2 · 26/11/2006 21:49

check out the prices- one may be double the other. It made very little difference to ds1- but he won't wear headphones which a) doesn't help and b) meant I was trying to do it when he was asleep!

PS emailed you on your email address that was playing up at some stage I think, so let me know if you don't get it!

Davros · 27/11/2006 12:02

The LP consultant we had said not to stress too much about the headphones at first and gave us strategies/ideas to help. DS wouldn't wear headphones at all a few years ago but now wears them happily! Personally I would spend the money on the LP as its yours forever and you can take it slowly etc

Jimjams2 · 27/11/2006 12:47

do you think its helped Davros?I'm not sure it did anything the first time round, so I'mnot sure it would be worth trying again. He was so young then though and didn't really tune into speech at all whereas now he does. Hmmmmm

Piffle · 29/11/2006 11:58

Interesting thread.
My dd has auditory defensiveness as well, we were advised by OT to try to desensitise her to noises she will be exposed to regularly, but it's so hard.
She will join in songs now, but if it gets to loud she will put her fingers in her ears still and hum quietly
she flinches when anticipating noises too - like door closing, hoover being turned on, phone ringing, however once they are on she has no issues with them - very strange, hence Ot has said she might not benefit from AIT.
she needs to sleep with a fan on as well for back ground low noise.
Luckily it has not impacted her life an awful lot - she has had some other issues which take more importance. This AD I think mayb be with her for life.

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