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Article in the Sun on having a child with DS

4 replies

TeeCee · 14/11/2006 12:10

Was in the cafe this morning and flicked over the paper to reveal the heading "Could you bring up a Down's syndrome child?"

I emailed editor of that section:

Dear Sally

I felt I had to email you with regard to today?s feature in The Sun - ?Could you bring up a Down?s syndrome child??.

Firstly I think the fact you have covered this issue in the Sun is wonderful, all awareness is great and hopefully will go towards expelling a few fears and some of the ignorance surrounding the facts of having a child with Down?s syndrome.

However I feel I have to point out a very important issue to do with the wording in the feature?s title.

You title should read ?Could you bring up a child with Down?s syndrome??

People with Down?s syndrome or exactly that, - people. They are people first, they are all individual and unique, the same as everyone else and should be seen as a person first, and their disability should be seen second.

My daughter, Charlotte has Down?s syndrome, she isn?t ?a Down?s syndrome?, she?s much, much more than that. She?s Charlotte first and she also happens to have Down?s syndrome.

Perhaps this may seem a small point to you, but to a mother of a child who has Down?s syndrome it is a very, very important one.

When I see or hear the words ?the Down?s child? or similar it upsets me so much and I know I?m not alone in this. My friends and family feel the same and I have spoken to many, many other parents who share this strong feeling.

I do hope you take this email in the nature it is intended.

I?m just a parent trying to do the best I can for my daughter.

I applaud you for covering the subject in the Sun and hope all you readers learn something from it.

Having a child who has Down?s syndrome really isn?t a terrible thing and myself and my family are all very lucky to have Charlotte in our lives.

Many thanks and my kindest regards

OP posts:
sphil · 14/11/2006 12:40

That is excellent TeeCee - hope they sit up and take notice.

coppertop · 14/11/2006 12:58

Well done, TeeCee. I hope you get a reply and that they remember your point for the next time they print a story about DS.

TeeCee · 14/11/2006 16:43

Had my reply:

Thanks for your email. I do appreciate you writing to me.

I hope you understand that this has been a steep learning curve for us and we have worked closely with the Down?s Syndrome Association throughout.

As a result we have made sure that we have not used the phrase ?down?s? and I hope you will agree that while the tone of the feature is non-judgemental, it is, on balance positive about children with Down?s syndrome.

I do take on board your comments and in the future will consider your points.

But I also think it is also very important to point out that we have had seven phone calls this morning from other mums and dad?s of children with Down?s syndrome and they have all been very happy with our coverage.

I hope you don?t mind if I keep your email. You are very articulate and obviously very passionate it would be could to include your comments in the future (obviously with your permission).

Best wishes.

and my reply back again:

Thank you so much for taking the trouble to reply to my email.

It?s wonderful that you?ve had a positive response to the feature; I thought that would be the case. I think your feature will go a long way in helping to educate people about Down?s syndrome and also help parents-to-be who may be worried about the possibility of having a child with Down?s syndrome. I agree that while balanced it was on the whole a positive feature and like I said I applaud you for covering this issue.

I also totally understand that this has been a learning curve for you and your team. Before I became Charlotte?s mum I would never have realised how important such a seemingly small issue could be such an important one. It?s been a steep, but wonderful, learning curve for me too.

I don?t mind if you keep my email on file at all and would be happy for you to use any part of it, or any future emails, or conversations we may have.

Many thanks once again for helping generate positive awareness and for replying to my email.

Kindest regards

OP posts:
sassy · 14/11/2006 16:48

Well done TeeCee - a good action by you and a great result.

(Nice to see you, BTW)

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