Griffiths Test results - sad face

[HugAndRoll]

Hello everyone, sorry I'm looking for advice.

DS2 finally had his Griffith's test. He's 37 months, and scores as follows:

Locomotor - 21 months (not in percentile range)
Personal-Social - 25 months (not in percentile range)
Hearing and Speech - 29 months (10th percentile)
Eye & Hand Coordination - 24 months (not in percentile range)
Performance - 24 months (not in percentile range)
Practical Reasoning - 30 months (30th percentile)

They aren't thinking an ASD (but aren't completely ruling it out due to his brother being on the spectrum), note that he works "very much to his own agenda and he can be quite resistant to following someone else's agenda." He is also easily distracted and has "poor attention".

I text his SNHV but haven't had a response. I have no idea what needs to happen next. He clearly needs some input, but from whom? I feel like I've had this bombshell dropped on me, and have been given no information as to what to do with it.

Not only that, it's DS1's DLA renewal time, so I've been filling that out (not much has changed which is both not surprising and depressing). I'm sorry if I'm asking a lot, but does anyone have any Mumsnet words of wisdom?

I've also posted this on the Goose and Carrot thread.

Well how about a very un MN hug from me?

Ds3 who is 38 months has just been dx with asd. He is scoring down in the 9-12 month range.

It's just poop

Thank you, hugs are gratefully received. It is totally poop.

Is he scoring at that age across the board? Do you have any idea what the criteria is for Portage?

Well as his older brother has sen I have had very early help.

I was mildly concerned about him at 15 months and as his brother has dyspraxia I thought I would push for referral. At 18 months we saw a pead and everything fired up for him straight away including portage.

With portage the pead requested it. They came and did a initial assesment and he was taken on before he turned two.

I'm not sure what the criteria is, but he was about the same then as he is now.

He is non verbal, clumsy, hyper mobile, unable to play with purpose or engage in adult led play.

He's also wilful and cute. But a pita! Love him. Never a dull moment!

He is scoring pretty much across the board. He scores better for physical development but it's not accurate as yes he can walk, climb etc but he gets hrm dla as he just DOESNT walk more than a few steps

Both DSs's reports have always made me cry. The percentiles can be brutal. Even the ones that show huge progress can feel awful because they spell out how hard your child finds things.

What the info does though, is give you leverage and evidence for finding the right support and the push to do so.

Where do you start? Paediatrician? GP? HV? Child development centre? Use everyone you know from DS1 and ask their advice - where do I go next? How do I access help? Is there help? Can you get OT or SALT locally? What groups do you go to? Who do you know with similar problems to DS2 and is further down the line? What would you like DS2 to find easier and target that?

As you can see - I don't have the answers. It isn't just you, I think everyone I know has been here and at each stage, I revisit the OMG what do I do now feeling.

The balance to all this is: DS2 is little and early intervention works.

Thank you. I need to get cracking with speaking to people.