We finally have an OT. WE FINALLY HAVE AN OT!!! what happens next?!

[IHateStampysVoice]

18 months of begging, pleading, being sent from pillar to post and they listened. Finally.

We saw a wonderful, amazing, thorough Paed at Eastbourne hospital yesterday (I'm being specific in case anyone is near and has a child who needs a good Paed).

He diagnosed him with Tourette's syndrome (this came as no surprise to me) possible dyspraxia (this was my tought anyway) and possible aspergers (this DID suprises me).

He also did blood tests to rule things out so they know it's neurological (what would they be testing for, does anyone know?)

And he said he has referred DC to the OT and th appointment will come through soon.

My poor son (8) was very overwhelmed by it all yesterday, but he was amazing. There were some tears but nothing quiet cuddles and sitting very still couldn't fix.

The consultant said the OT wasn't just one appointment, it would be several over a period of time before they reached a diagnoses. His surprised me too.

Those who have been there and got the Tshirt, please could you shed some light on this for me?

The blood tests and what they do at the OT appts?

TIA!!

Sorry I can't answer your questions , but I am looking for a pead in East Sussex . Can I please be cheeky and ask his name ? Was this a private appointment ? tia

Yes! Dr Mohammed. When I get home I can find out his first name as well. Although it shoiuld be on the Eastbourne hospital website.

And no not a private appt. but it took several trips to the GP to get to him.

Dr Mohammed was specifically with the Scott Unit.

WOW what a wonderful service to have from the NHS.

My dcs both needed OT but were over and out within one meeting, so cannot help with what lies ahead for you and dc, except that it is all very thorough and impressive.

Lots and lots of luck going forwards to you and dc

Freshstart 2014

We're in East Sussex, but crossed the border to have DS3 assessed by DR Shakoor in Tunbridge Wells.

I was very very impressed with her and felt like she really knew her stuff. We paid privately, but she very kindly knocked off an hours work from our bill, when her report took quite a lot more time than anticipated.

Our OT assessed and observed dd at home and at school. I was asked to complete a detailed questionnaire called a Sensory Profile, if you get one do take your time and be as thorough as you can with it because it does shape the help and advice you are given should your dc have sensory needs. We seemed to have loads of visits over a few weeks, some were observation with questions and answers for both of us, some were physically trying to do certain exercises, discussing what strategies we could implement to help both at home and at school and trialling different pieces of equipment that the OT suggested to make dd's daily life easier. The outcome was a programme of exercises tailored to dd's needs, a report for me including all tests, results and dx, a report for school suggesting interventions to help dd.
Then there were termly follow-up appts where dd chose if it would be at home or school. After that, dd was educated out of county so OT couldn't liase direct with school, but all I had to do was raise something as an issue, dd was seen at home and school were happy to implement the OT's suggestions.
dd was 10 when someone finally listened to me and referred to OT, there was no early intervention then, so we had a lot of wasted years to catch up on.