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SN children

Here are some suggested organisations that offer expert advice on special needs.

DS1 (2.8) is 'presenting with ASD' any advice welcome.

58 replies

MrsKoala · 21/04/2015 09:40

My DS1 has always been an unusual child and we struggled with him from 15mo and started seeing a Paed. The Paed now says he is old enough to diagnose and she thinks he is strongly presenting as having ASD. We are on the waiting list for a formal assessment but the Paed thinks this is just a formality and we should start researching and acting now.

I have a meeting with his pre-school about this this afternoon and i am a bit tearful and unsure of things i need to say. If anyone can suggest what might be important i'd really appreciate it.

DS1 is a good talker at home but is very very quiet at pre-school. He is full of energy and loves running around.

We particularly struggle with getting him to go to bed. Any attempts to put a routine in place are met with meltdowns. He now hates the sight of books because he associates them with going to bed. Any tips also gratefully received.

Thanks

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StarlightMcKenzee · 28/04/2015 13:43

Oh ffs. They need to grow up. My Dad has passed away sadly but upon hearing the diagnosis he said 'Good! Who wants to be the same as everyone else stuck on a trajectory of expectation?' Then he enrolled himself on a NAS Help! course and later told me to home educate as teachers were being trained to facilitate further narrowing of that trajectory of expectation. If you don't compete in the first place you can't be a failure apparently.

He was a qualified primary teacher of 40 years and a teacher trainer. He adored ds.

He taught be to believe in myself and my decisions and to not look to others to tell me what to do or how to do it. Or at least I could look, but make up my own mind iyswim.

sickofsocalledexperts · 28/04/2015 14:59

Ah that website you do have to jun before you can message anyone

sickofsocalledexperts · 28/04/2015 15:00

Free to join though, as is the yahoo group on aba

MrsKoala · 28/04/2015 15:14

Starlight - he sounds amazing. My parents are of the everyone needs to conform and no special treatment should be given school of thought. They say things like 'sometimes you are just going to have to put your foot down and make him do as he's told'. Like I'm just not being assertive enough.

Sick - yes I have joined but the lady I want to message still isn't showing any contact details. Thanks for looking tho. :)

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StarlightMcKenzee · 28/04/2015 16:25

'sometimes you are just going to have to put your foot down and make him do as he's told'.

I'd like to see them try that! It won't work. It just won't. Some children with autism have starved themselves for weeks when their caregivers take that attitude. No they won't eat it when they're hungry and no they won't eat it if you're firm.

There are ways to get kids to eat things they are scared to, but it takes expertise, skill and their cooperation.

MrsKoala · 28/04/2015 16:26

Aaaaargh. Just picked up ds from preschool. He has a fat lip where he jumped off a sand box and put his tooth thru his bottom lip and he also (in a separate incident) injured another boy by pushing him backwards and he cracked his head on the cupboard.

They said he pushed lots of kids but luckily only hurt one. But if is carries on they won't be able to take him anymore.

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sickofsocalledexperts · 28/04/2015 16:39

Yep my boy used to push and was aggressive pre ABA. I think the turning point for me was when he bit his grandpa to the bone. Put an ad on facebook groups like aba4all or UKSBA I reckon

MrsKoala · 28/04/2015 20:34

The odd thing is there is just no aggression in him. He does it when he's happy and to show affection. Especially biting. He only bites me, my mum and dh. He just gets so happy he leans forward and sinks his teeth into you. It's why the preschool don't know how to deal with him. He doesn't do it in temper or jealousy, and he doesn't understand that it hurts.

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