Is there a different feel to this Board now its not on Active Conversations

[Twiglett]

unless you choose it?

does anyone think it has solved any of the issues?

I think the £5 fee to CAT has probably stopped them now.

Obviously we're not worth a fiver then.

It would be interesting to know just how many posters got them though.

now...i will admit that i had not even thought about the fact that people could google...and stupid really cos that is exactly how i found mumsnet....

so i can see your reasoning now....

the trouble with me is that i am so easily pleased...and trust everyone...so the thought of anything sinister never crosses my mind.

Flames...i am curious about the bit you said about editing...was it to do with the californi post....as sensitive old me got a bit upset by that......i then worried it was my depressive description of how i feel about his schooling!!!

then i thought...i know ...i'll ask you!!!

Coppertop save this link to favourites - it's last 100 active convos with SN but without buying/selling.

Ooo just noticed flame posted similar further down.

I actually feel opposite to you Fio about the google thing - because I'm still to get in toouch with an older child with dd's specific heart problem. I'd be glad if someone got in touch through googling. Although I am careful about posting anything too personal.

saggarmakersbottomknocker, what condition does your daughter have? My DS2 had pulmonary atresia which was operated on at 3 weeks.

TJ - she has Anomalous coronary artery from pulmonary (ALCAPA), supravalvar pulmonary stenosis, pulmonary, mitral and tricuspid incompetence, LV dysfunction from two MI's and DCM. . The ALCAPA is the rare bit. She's doing great though!

How's your ds?

Blimey! I don't suppose there are many around with that combination of problems!

DS2 is absolutely fine. I visit this section because DS1 has special needs, I consider DS2 to be 'normal'!

When he was born, we were told that he had PDA, given an out-patients appointment and told that it would probably right itself soon. We were visiting the Renal/Cardiac ward with DS1 (who's had a kidney transplant) and nurses took one look at DS2 and put him on a sats monitor. They were in the 60s so he was admitted immediately and they discovered that it was pulmonary artresia - if it wasn't for the PDA, his heart wouldn't have been able to function because that's the only way the blood was being pumped round his body! He had radio ablation at 11 days which was unsuccessful so had a patch inserted at 3 weeks. We've been very lucky because he's needed no further treatment or surgery since although he has a leaky valve which will probably need replacing before he reaches adulthood.

How's your daughter doing?

She's doing really well - really crappy first couple of years as our local hossie misdiagnosed her until she'd had two heart attacks and was in end stage heart failure at 4 months. Took forever to get over her surgery, loads of complications but is 13 now and the best she's ever been. She'll need more surgery but not for a good while hopefully.

Sounds like you had a 'lucky' break being at outpatients at the right time.

Glad to hear she's doing well now after such a scary start! ... and yes, we were very lucky to be in the right place at the right time.

Oh, I think that came out wrong with the editing MrsF - What I meant was, is the educational special needs section on the main "active convs", or is it only there if you have included SN topics.

You didn't seem to have many replies to it apart from me n my very unknowledgable ramblings, and it got me thinking about whether that section fell under the sort of hidden area too. I've been on the with SN but without buying and selling link from the first day it changed, so I don't know what went and what didn't.

Did any of that make sense??

i am sure you will be missed fio

Fio - I didn't realise that being Googled was one if the rasons you thought of a passworded area - and that does make absolute sense, in the context of you and people like JimJams wanting to be able to discuss specifics of your children's conditions.

It makes complete sense. I discovered MN by googling Piedro boots - and finding a post by you about scuffed purple piedros .