Advice please Re CAF Meetings.

[snowgirl29]

Hi there, i am an old MNer who has rejoined. I am just wondering if anyone could help me please as I am new to all of this and this is proving very confusing terroritory and I'm not sure what the best approach is to take.
Ds (6) has always struggled and we are thinking he probably has ASD which currently remains undiagnosed. He was eventually referred to a Paeditrician last year who at the first assessment told us he has GDD, Autistic Features and he has the Mental Age of a three year old.
Fast forward to the next appointment when she has all the reports through from School etc and now the Paed is hesitant as the School have said "He is fine for us". I know this is untrue as I have seen this with my own eyes and so have other schoolmums when they have been dropping off and collecting their children. Not to mention the times the Teachers have called me in because x y and z happened.
To cut a long story short, the Paeditrician said she was going to set up a CAF meeting where we could go through the Issues ourselves.
I'm confused as to why the Paeditrician is now adamant it is all developmental yet when a Behaviour Professional visited us recently, they signed us up to classes for children with additional needs?! Why would they feel the need to do this if they thought he was 'fine' for want of a better word.
The last contact I had with the Paeditrician I was told "Cant you just implement at Home what the School do for him, it seems to work fine for them".
I'd appreciate any advice you could all give me, I have recently had a lot go on in life which has knocked the stuffing and the confidence out of me and I need to get it back for my son.
To give you a brief insight into what ds is really like, when a Member of the Behaviour Team came out for a home visit, ds didn't say a word to her the entire time she was there and he growled at her.
The paediatrician refuses to investigate further as in their words "well he talks to me okay".
Thankyou in advance I hope you can help.

p.s I have asked the GP for a second opinion and the GP said they don't think one is necessary right now, I have been advised to put a complaint through PALS about the Paeditrician but I am unsure as to whether if I do so this will be brought up in the next CAF meeting as me being difficult and or obstructive.

write to teh school copuying the governors and asking howthey are going to prevent a further incident. try and put it aback onto them. he was injured in theri care and you need to make a fuss about this.

Thankyou BlackEyedSusan. It's Half Term but I will knock something up over the week.
I asked the Teacher how we were going to do this when it's obvious that he won't be telling anyone and they said "well he's just going to have to tell you all the time and then you come and tell us". He'd banged his head that day. If he started throwing up in the night I'd have ignored it thinking it was just a bug. I will check next week if it has been noted down in the Incident Book (albeit late) and then go from there.

We had very similar issues when my dad was younger but with a psychologist at the CDC. The pead stated in letters several times to us when dd was 2-3 years old that he wanted her assessed for ASD. But the psychologist who was head of the CDC personally told me there was nothing wrong with DD and she would 'resign from her post if anyone ever diagnosed anything' she said dd was smart and as she could put her shoes on the right feet it was clear nothing was wrong?!?! She then told me dds issues were 'being cooped up' in my 'tiny little house' all day!!!!! We live in a three storey house ffs so hardly a bedsit size!

Fast forward almost 4 years and she's no longer under the CDC and is now finally back on the pathway to being assessed for ASD. Four wasted years. When we have our diagnosis I feel a formal complaint coming on.

Trust your instincts and stick to your guns.

Your son ideally needs to see a developmental paediatrician rather than a community one. This particular community paed that you have been unfortunate enough to be under is simply not up to the task.