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How do you deal with it all?

21 replies

wevecomeonholidaybymistake · 22/03/2015 22:35

DS has AS. His behaviour at times is challenging to say the least. When he's anxious it escalates.
This weekend has been horrendous, ending in him throwing things at me when I asked him to get changed then he bit me :(

Shouting at him makes it worse, removing things seems to have no effect. But he also needs to learn he can't attack people when he's stressed even though he can't help the stress iykwim.

So how do you handle violence? Do you have consequences? As he gets bigger and stronger I'm scared he's really going to hurt someone.

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senvet · 22/03/2015 22:39

Has dc been seen by a sensory, or any, OT?

wevecomeonholidaybymistake · 22/03/2015 22:40

No we've seen no one since he was diagnosed last year.

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2boysnamedR · 23/03/2015 00:28

How old is he? I always feel bad commenting on the asd threads as no formal dx yet of asd in either of my boys but it seems they both have it.

I worry about this too, but I do believe that as they get older they can improve. If not we wouldn't ask for help and interventions. So I hope it's just a case of keep on teaching them and they eventually will stop.

But that's all based on knowing why they lash out and explode. You deal with all the reasons why they get to that angry lashing point and try to start there and more can fall into place from a calmer state.

So with my older boy I don't confront him, he doesn't escalate into a meltdown, he's more receptive to listening to me. It's never that simple in reality but it's the simplified version of our very complex life with ds.

In my usual convoluted way I guess what I mean is don't start with his behaviour - start further back with the trigger.

I'm sure someone less tired than me who really understands asd will be along soon.

wevecomeonholidaybymistake · 23/03/2015 07:24

He's 8. We know it's the stress that triggers it but sometimes we can't avoid it.
I sympathise with him and his anxiety but getting physically attacked and bitten is not acceptable. How am I meant to handle that? Do we punish him or let it go?

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PolterGoose · 23/03/2015 07:52

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Frusso · 23/03/2015 08:32

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Redoubtable · 23/03/2015 09:11

I have been exactly where you are with DS...although he rarely attacked me, he used to hit younger DD every day.

I agree with what others have said re the anxiety...in fact, realising that anxiety was/is a HUGE trigger for DS has been the key for me.

My strategy was

  1. Realise that the behaviour comes from anxiety
  2. Don't engage in reasoning with him
  3. Name the feeling for him i.e. "I can see that you are angry..perhaps you feel worried about going to the school play/perhaps you dislike the noise in the supermarket...."etc
  4. Recognising the vast number of things that provoke anxiety for my DS. Some are sensory (tinny music in shopping centres, echoy swimming pools) some are social (how to negotiate a friend's party), some are overwhelm (Christmas!!) some are keeping it together for certain situations (visiting grandmum, having people in our house).
  5. Learning what are good strategies for my DS to reduce his anxiety.
This has been key for us. He can now recognise my palm up/Stop sign as a prompt for him to stop, take a deep breath and step out of the situation. I've used meditation in the evenings which has also helped. Any heavy work play (like tramping in the country, ball pools, swimming) also keeps the anxiety at bay.

It hasn't gone away. But my DS now rarely melts down....maybe 3-4 times a year (I never thought I would say that). So all the time and effort has paid off.
My goal now is to move from him relying on me to modulate his emotional temperature, to him recognising what's happening and taking responsibility for it himself i.e. I want to stop being his Executive/Emotional Manager.

wevecomeonholidaybymistake · 23/03/2015 13:53

I honestly feel like I'm so shit at this. He's unhappy, we're all unhappy.

Where the hell is the support? We basically got a diagnosis then left to get on with it.
I dread picking him up from school as I know it's all going to start again I'm so tired and defeated.

He's always so sorry afterwards I guess I just want that magic wand to wave it all away.

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PolterGoose · 23/03/2015 14:00

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Redoubtable · 23/03/2015 14:16

Of course you're sh*t at this....you've never had to deal with it before. You cannot be good or perfect at this the first day/week/month/year.

I'm a hell of a lot better at it, cos I've practiced and practiced....and there are still a few days when I'm exhausted when it gets away from me.
But, if anything, DS learns more from those days as he sees me get upset, recover, apologise, make things better, move on.

Don't give up. Don't beat yourself up. Be kind to yourself.

2boysnamedR · 23/03/2015 16:07

I find the worse time is right after school. Sometimes if I can feel he's in "mood" I don't say more than hello until we get home.

wevecomeonholidaybymistake · 23/03/2015 16:21

Yes totally worse after school. He's fine there though. I think they think they're making me feel better by telling me he's really good there,in fact it makes me feel even worse.

Right. I'll stop moaning and get on with it.

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PolterGoose · 23/03/2015 16:24

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Redoubtable · 23/03/2015 16:27

Tony Attwood talks about the stress of being at school and coming home to their safe zone where they can let it all out.

blankgaze · 23/03/2015 18:56

The support is where it always is, on another plane of existence Sad

Do you drive him or walk him home? Could you give him a small amount of a chewy snack and/or a heavyish bag to carry so he has something to do and don't talk to him until he's ready to talk to you. Don't demand anything, even his attention and try and find ways of making your journey from school to home a more relaxing experience for him.

He's just absolutely overloaded and needs to either process all the irritations of the day or more likely let them explode. He isn't yet emotionally mature enough to cope with that in a controlled way and he won't yet be able to explain why he does that.

Hang in there, you're not alone, learn how to spot triggers and defuse his anxiety Smile

PolterGoose · 23/03/2015 19:03

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2boysnamedR · 23/03/2015 22:12

You don't have to stop moaning, please moan freely here! If you can't moan here than where? It's a learning process so it's not "here's the answer, get on with it" far from it. All asd kids are different and a lot is finding your way. You'll be in good company learning here ;0)

It all sounds good on paper but reality is not not plain sailing. The ideas work but it's going to take a while

My ds is fine at school. It's a stress build up during the day that explodes out when the walk out the door.

marioANDLuigiANDPrincesspeach · 24/03/2015 07:31

When I realised that it wasn't about trying to change him, but trying to change me, my life became much easier. Took me a long while to get to this point though.

I resented it hugely as HE had the problem not me... but once I became a bit more flexible - stopped sweating the small stuff and accepting that sometimes very little was the best they could do - life got easier.

For me it was reducing my expectations - accepting him where he was. NOT at all saying you accept the violence - but when I adjusted my thinking and started accepting that after school was horrendous for his anxiety, I found the meltdowns lessoned and the violence diminished. By expecting very little from him, he could calm down (lots of sensory strategies are good.) A snack he loved (so what if it was crisps or a sweet, why battle with a carrot if he was happier with something that I disapproved of!) If he needed to watch TV for an hour to wind down - so be it, rather than me sticking to my rigid ideas of how much screen time.

Not saying you give into everything - but when I'm stressed - I want wine and chocolate, not a glass of tap water and lovingly chopped carrots and healthy dip!

Before I would battle with him as I had my ideas of perfect and idyllic childhoods and was trying to hard to be a perfect mum. I was too concerned with what children should be doing after school, rather than what mine could manage. When I dropped trying to be a perfect mum - trying to do playdates / craft activites, limiting TV etc and started realising what my boy needed, (love, tv, snacks and space to just be) it reduced the pressure on him and the behaviour problems lessoned.

I sometimes feel I have sold my soul to the devil - All the ideas I had on good parenting have gone out of the window - but they were based on my expectations on having a NT child.

When I accepted that he wasn't NT and stopped worrying about what everyone else thinks and just went with what he needs, life became easier. I still sometimes feel bad that we should be doing more etc, but that is my problem not his.

We had some therapy and I was expecting them to tell me how to fix his behaviours and how to discipline him - what consequences to give etc. I felt really judged at first when they started telling me to change what I did - I'm not the one who bites, kicks, spits, hits. But when I got off my high horse, I realised it was good advice - when I chilled out about things - he chilled out. Still have the meltdowns at times of course - but have greatly reduced.

I accept that they let it all out at home - as they have to work so hard and contain so much when out. So at home I try and keep expectations to a minimum - we have rules and routines, but they are based on what he can do - where he is developmentally, not on what a NT child of his age can do.

It is so hard and at times relentless. I know it really hurts (both physically but more in your heart) when your child lashes out at you. Now I see it as a massive panic attack rather than naughtiness and it feels a little less personal.

I am very clear with a firm voice "No Hitting" etc if he is lashing out, as I think they need to know it is not acceptable behaviour. It has little impact though - if he is lashing out I try and remove myself , other kids and objects out of the way and offer sensory strategies (best before they are at full pelt.) to try and calm them.

Prevention is always better than cure, but you can't prevent everything. You can only do the best that you can do. Don't beat yourself up about it. Sometimes things change and you can't get in there to prevent it.

It does put so much pressure on you though to be constantly helping them to stay calm. It is really exhausting but remember you can only do your best. You are a mum, not wonder woman. it's ok to not get it right all the time.

Try and somehow get some time for you away from the pressure - I go for a run a couple of times a week, when my DH is home to look after them. I sometimes feel selfish doing it, as there are a million other things that I could be doing and mothers guilt kicks in (as I look at the ironing basket and the paperwork that needs sorting and the cupboards that need sorting out) and I feel selfish. But I need the break for my sanity. Not sure if you get any time to yourself but really try to put yourself first a couple of times a week.

Not sure if my rambling will help - I know at his worst I just wanted a magic wand to make him behave, but it 's just not so simple.

Take care of yourself.

PolterGoose · 24/03/2015 07:47

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Redoubtable · 24/03/2015 12:58

mario that's a brilliant piece.

Really well written and so honest.

It is about changing myself...in the best possible way. Thanks to DS I've a lot more patience....because no patience= DS upset. My frustration= DS lashing out.

I have to look after myself first...every other SaLT or OT or Psychology strategy can only be implemented if I am calm and in control of myself.

Any "success" I've had with DS is due to me managing myself better. I've used mindfulness meditation for myself as well as DS. (no running here either- the seismic effects would not be good Grin)

CAVEAT: this is not to suggest in any way that ASD= poor parenting.

wevecomeonholidaybymistake · 24/03/2015 21:26

Thank you all.

Mario, you talk sense. I want to be a perfect mum. I have a daughter too and I feel like I can't let him on his tablet for hours and not her. Trying to juggle both their needs exhausts me.

I'll try to get more me time, running I reckon I can do.

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