Active discussions

Please or to access all these features

Talk
SN children

Here are some suggested organisations that offer expert advice on special needs.

Original poster

Childrens communication checklist (CCC2)

10 replies

Pootrouble · 14/03/2015 14:23

Hi we have been sent this checklist to complete before the nhs will accept dd onto their lengthy wait for an ASD assessment. We have to complete one and so do school (she masks at school). We have done ours and sent it off but kept a copy. Any idea how these things are scored? Or anyone got any more info on this particular checklist? Thanks

OP posts:
Original poster
Pootrouble · 14/03/2015 19:31

Great thankyou

OP posts:
Firsttheyignoreyou · 15/03/2015 09:04

We have just completed this and had it assessed by a SALT. They took my input and scored it and the teacher's separately.

One of the composites is for social interaction deviance and when that comes out as negative and is combined with another composite - for general communication - a score below 55 in indicative of ASD. Interestingly, my input did vary from the teacher's but both reveal his autism. I have one question for you, how many children are in her group because if there are a lot, the CCC2 is apparently less effective.

The report also pointed out that CELF-4 (another assessment used regularly) doesn't get to the pragmatic difficulties as well as ACE would.

Original poster
Pootrouble · 15/03/2015 09:38

Thanks first that's helpful. There's 30 kids in her class and her teacher is a job share as well! So we will try and ask the one that does three days. However, the forms have been sent to the senco to complete despite the senco rarely seeing my daughter. I'm hoping we can see the senco Monday and get her to give them to the teacher to complete. We were also given another sheet to complete with specific questions around social communication so I've written loads on this and given them lots of specific examples. The thing is if the scores doesn't meet the threshold for whatever they're looking for then they will refuse to even put her on the waiting list for asd assessment despite the pead requesting it.

OP posts:
Firsttheyignoreyou · 15/03/2015 09:51

This is where I recommend being a very pushy parent - it is a bit like being a general: you rally the troops and ask everyone to get on the same page. It is awful but those who shout loudest, do get seen, as do the very persistent.

Ask the paed to contact the assessment team direct, if she/he hasn't already.

When talking with your SENCO/teacher explain that you would like them to focus on getting DD assessed and to do this they need to describe the worst-day scenario - those when she is simply not coping and all her differences to other children.

Don't forget if they refuse to put her on the list, you can ring them and ask them to explain why and who you should be contacting to have this decision reconsidered.

Original poster
Pootrouble · 15/03/2015 14:51

Thanks first, her teacher is very good so will speak to her first thing Monday. As far as the actual process goes it's very complicated in our county!you go through a pead first who identifies the need to have an ASD assessment and refers to autism team. Autism team then make you jump through hoops before they will accept the referral! They make it very clear in their letters that they've not accepted you for referral until they have got satisfactory evidence from the checklists etc and then and only the. Will you be granted permission to go onto their glorious two year waiting list!!!M bloody stupid system if you ask me.

If however we are unlucky enough not to get onto the waiting list I suppose we wait for next pead app and ask for out of area second opinion referral which would most likely be quicker than the crappy in county system anyway

OP posts:
Firsttheyignoreyou · 15/03/2015 14:57

Flaming nightmare.

I like your backup plan though Grin.

And if you get truly desperate, there are private pathways.

Original poster
Pootrouble · 15/03/2015 18:57

We have already been private who diagnosed childhood generalised anxiety disorder with AS tendencies which is why we are awaiting the NHS it's awful!, we will ask the pead to refer to GOSH for diagnosis if we don't get anywhere

OP posts:
Firsttheyignoreyou · 16/03/2015 21:02

The Maudsley Hospital in London has an autism service. Would your paediatrician refer you? It is worth a try. Sadly, we need plan b, c .... through z to get what our kids need.

Original poster
Pootrouble · 17/03/2015 18:41

hi yes my pead is very understanding and I'm sure she would, thanks i will keep that in mind should they refuse to assess her

OP posts:
New posts on this thread. Refresh page