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Best person to assess DD5 - Subtle concerns

7 replies

kyz1981 · 25/02/2015 15:28

I have 3 DC, My middle DS 4 has ASD - very obvious ASD so was very clear cut easy diagnosis.

However my eldest DD 5 is having some subtle but very real issues and I am not sure what to do /who to get to look at them.

She has a very good reading age but struggles with writing, learns her spellings well and can speak them correctly but when writing them down gets them wrong, school say there is issues with her writing and processing information from one format to another, she is getting support with this.

The main thing that worries me is her lack of her own self if that makes sense, she does not know how to approach children and struggles to converse with them but will happily go along and play and will control the play with younger children. She tends to copy her peers so if they are finding something funny she will look around and laugh but could not tell you why she is laughing. She panics when put on the spot.

She does not really know what she likes, she loved winnie the pooh then Frozen came out and everyone at her school loved it, she refused to watch it as she heard it was scary but insists it's the best film ever, I brought her the light up Elsa for xmas but she does not like the fact it makes a noise so will tell me not to press it as the battery's might run out.( she freaked the year before when we got her a baby annabel) My DS (ASD) is Thomas obsessed and she now wants to watch Thomas all day or do what ever he is doing.

She has very little reaction to her sister hurting herself and does not naturally give comfort although she can swing to being over empathetic if the mood takes her usually over an animal rather than a person. One of her friends says to her that she will miss DD in the holidays and asks DD if she will miss her DD says no and just carry's on playing, this sort of thing is happening more and more at school, with other children getting upset over arguments and DD not reacting at all. (school are fine with this as it's one less emotional child to deal with, however the other girls mum tells me pretty much how my daughter has upset hers regularly).

My mum took her to the cinema on the train and sat in the wrong place and then again in the cinema, she no longer want to go on the train in case she sits in the wrong place.

She can be quite literal and anxious although she is not shy her social skills make her present this way, she also comes across as a perfectionist (she's not, she just does as she's told without question)- if that makes sense and like to follow rules.

I have no idea who would be the best to come and tell me that I am either being ridiculous and it's a personality thing, I would think ASD but she does not have the repetitive behaviour or restricted interests just the social copying and not quite getting stuff, School see the issues but as she copes well at school and she is not academically behind they are not fussed and I am not looking for support in school but just an idea of what it is if anything and what I can do to help the copying and bring on her social side. She is in a very small nurturing school only 50 pupils and only 13 in her class.

Would a ed psych or Salt be best to asses the above issues (privately) and let me know if it's something and nothing or if I need to pursue a diagnosis or is it best to just try and support her myself and wait and see- I think if it is ASD it will become much clearer in the next few yrs.

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bbkl · 25/02/2015 15:50

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senvet · 25/02/2015 17:29

echo bb - you have described social communication issues and a rigidity of thought, so that would point to a paed to look at ASD.

The spelling/handwriting is more like my dcs. One had dyslexia/dyspraxia, so could commit spellings to short term memory and spell just fine for a spelling test. The moment it came to writing a story or a letter, he would totally forget how to spell the word and spell it 3 different ways on the same page. For him, the dyslexia meant that his visual memory was having to work overtime just to get the letters down the right way round, and the dyspraxia meant that he was struggling to hold the pen, so that was distracting him as well.

For the dyslexia we needed an EP and for the dyspraxia we needed an OT.
For ASD you need a paed to diagnose.

My dd on the other hand is hypermobile, so holding a pen is like trying to write with thick woolly gloves on. That was a job for the OT.

The best EP I know is Peter Parkhouse who is out in Weston Supermare and charges for travel, but is really excellent. Loads of other good ones, depending where you are.

The OT we used is London based, but does not like Tribunals. If you have any sensory issues going on associated with the ASD you would be better with a sensory OT - the only one I know is Miri Horovitz Cohen at OT London.

Hope this helps

bitbap18 · 25/02/2015 18:42

Same as BB and senvet, def seek help, and I'd start with a good gp, if you have one.

My dd is also very subtle with her traits etc, but it's there. School didn't think anything wrong as so bright, can play blah blah, but when the issues are looked at together, it's clear. It's been a long road of getting fobbed off, because it was so subtle and the things weren't being connected together.

Good luck!

kyz1981 · 25/02/2015 18:56

Thanks so much for your input, I have a great private OT who saw my son and his NHS OT is linked with her school anyway, I do want to look at hypermobility as she has that mildly in her knees and there is a strong family history.

We are in Bucks/Oxfordshire/Berks borders. I spoke to the school about Dyslexia and they can't tap in to Ep resources unless a child is behind and she is a little young to be formally tested privately at the moment.

Mental heath problems and identifying a sense of self are my main long term concerns.

I did wonder if a good EP private assessment would flag up possible ASD issues and then I could take it further with a paed. My only worry about going for an NHS diagnosis is that the service here at the moment is so dis-jointed and full of locum's that I am not sure we would get what we would want. I am happy to go private but have no idea who has a good reputation for picking up very HFA in girls.??

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bbkl · 25/02/2015 20:07

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Mapleleaf3 · 26/02/2015 07:07

We are in Oxfordshire area and my daughter, same age as yours, was seen by Margo Sharo last month. Report just came through and it is very helpful. We are also seeing a psychiatrist at CAHMS and I have been so impressed with her, she just understood right away about my daughter, despite it also being lots of similar things. Happy to pm you the name of the psychiatrist, in case there is any way you could get yourself referred to her. We are on the verge of an asd diagnosis, from margo and from the nhs.

kyz1981 · 26/02/2015 14:05

Thanks Mapleleaf3 that sounds great, If you could also PM me a rough cost of Margo Sharp as I have a rough price for Daphne Keen but no clue with Margo.

I think I am going to push forward with it as I do believe it will help her in the long term.

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