Meeting with autism co-ordinator next week to go over reports.

[DishwasherDogs]

Just had a phone call from the asd co-ordinator at the hospital. She wants me to go in next week to go over the reports from ds's assessment last month.

I don't know if there's anything I can do now that would make a difference.

I spoke briefly to ds's HT who was "pleased that I've made the connection that ds behaves differently when he's with me". Which I've translated to meaning she (and others) believe that this is a parenting issue, which dh and I know isn't true.

Is there anything I can do or say next week?

Yes you're probably right about a reflex action. Ds certainly does a lot of things without thinking, and doesn't seem to remember clearly what he has done.

Looking forward to a time when I don't have to think about it all the time.

Just heard from Margo Sharp that the NHS specialist facility no longer exists. That's a bugger.
Going to ring the NAS helpline again to find another, poss one that looks at PDA as well.

Eventually they have an MRI and clinical assessment with neurologists, who see signs of a tumour, would they really allow their professional medical conclusion be over ridden by the patient's line manager and chief exec? Just because they don't see anything? No, they bloody wouldn't. Grrr

I'd be so very tempted to cut & paste that into the complaint

Great ormond street social communication disorder clinic. GP can refer. CAMHS just have to rubber stamp.

All habitual behaviour is learnt. Disabled people aren't incapable of learning behaviours - so why should that rule out ASD

Your bowels learn how to poo on a toilet. Migraine sufferers learn to take a painkiller & lie down in a quiet room. Wheelchair users learn to get through tricky doors. Dc with classic ASD might learn that lining up cars is fun, screaming makes teachers leave you alone, and it's relaxing to wiggle fingers in front of your eyes.