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Just been told toddler has ASD what a week!

33 replies

2boysnamedR · 09/02/2015 17:13

I'm not surprised or upset

It will hit me no doubt.

How I long for for my baby to call me mum before she turns 3. Ds is three next month and totally non verbal. He's never said mummy

A friend said I'm lucky I never get the why, why why questions. If only she knew what I feels like to wonder your child's voice sounds like

Seems more like the elder boy we won the appeal for has asd than ever now, which does hurt. Why I dont know.

Actually I do know why it hurts. He's 7. Years of fighting, no closer to a answer

OP posts:
2boysnamedR · 11/02/2015 14:23

Oh so true. Dh said to me "you've really changed" when asked he said for the better.

My trusting innocents has died with a big part of me, (and my heart and soul) years ago.

At times I miss the old me, mostly I'm glad. I'm someone I never wanted to be but a better person for that.

That's the gift of sn kids. I stepped up because I had to. I truely belive I'm more worldly wise the I could have ever been. I can also apply that to all aspects if life now.

Plus I can kick butt and hold a grudge for longer than a elephant ( so it's not all good!)

OP posts:
MeirAyaAlibi · 11/02/2015 22:50

Your heart and soul aren't dead 2boys. They're just more feisty robust.

I 'feel' very different. More arrogant and impatient confident, less likely to give up, far less tolerant of timewasting, more compassionate to those who really are having a rough time. And much more likely to tell others not to take any sh*t from The Man to keep pushing for their legal rights.

MeirAyaAlibi · 12/02/2015 21:53

Paediatric appointment over.

He was very hyper and she did notice the self-directedness. But she doesn't think it can be ASD.... because he's quite sociable and likes hugs

Clinic will see him again after nursery have filled in questionnaires and he's had a once-over from the various therapists. Depending on the outcomes, then decide if he should have ADOS etc, call it ADHD, or wait & see.

MeirAyaAlibi · 12/02/2015 22:52

Chinup- the running thing sounds interesting
(Sorry to hijack 2 boys)

2boysnamedR · 12/02/2015 23:07

My toddler loves hugs and kisses. Have a look at the nice guidelines on asd. "Do not rule out asd due to eye contact and affection towards family" or along those lines

OP posts:
senvet · 13/02/2015 00:50

just see constant seeking of hugs as a desire for deep pressure ie a sensory seeking thing

When will these alleged professionals catch up?

zzzzz · 13/02/2015 02:06

This reply has been deleted

Message withdrawn at poster's request.

Rasell · 18/02/2015 22:21

Hi,
Just read through & wanted to send you a massive hug. I hope you're all OK, I wish you all the strength in the world & I hope that dd is free of any difficulties!
Good luck :-)

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