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Not sure if 26 month old is showing signs of special needs?

18 replies

Rasell · 07/02/2015 07:16

Hi,
Apologies as this may be a long post, but I'm not sure how concerned I should be about my LO. He's got a big brother & we're a bilingual family which are the reasons I thought he was a bit behind. He has always been a happy, smiley little boy who started walking at 10 months and has been extremely active ever since!
He's never really lets me read to him, just wants to turn the pages/do any actions in the book but has no interest in the content.
He has decent eye contact, but only when he wants. I find it impossible to catch his attention long enough to teach him face/body parts, so he still doesn't know any (used to point at eyes but no more).
He likes music but won't sit or pay any attention to nursery rhymes (does like row your boat/inch winch & wheels on the bus).
He likes animals & animal sound books & wants to touch them but has never made an animal sound (used to do chicken arms but no more).
He constantly does the things he's told not to do, looking straight at me & smiling. Sometimes he'll do it loudly then stop & run away when I come close.
His only word was 'mum' from around 18 months, but hasn't said it for ages. When he wants to says 'bye' with a wave and has very recently started saying 'ok', 'hiya' and possibly another couple of words but not clear enough to be sure.
He imitates 'shh' with finger on mouth, loves hiding & jumping out (doing it & being jumped out on), chase, cuddles, tickling, babbling to you, touching your face, watching the TV shows/movies he likes, playing with lots of toys, stacking, lining up & organising, marking with crayons & squishing playdoh, sand & water, but often seems to play a bit differently to other toddlers.
He rarely shows any response at all to his name being called or other noises, but does sometimes. We had his hearing checked a few months ago & it was fine.
We realised at around 18 months that although he seemed perfectly bright & well, he wasn't talking or listening as he possibly should be so took him to gp to be on safe side. Paediatrician visit, hearing test & speech therapist assessment later we're waiting on further appointments in april & he now goes to preschool couple of times a week to encourage speech. Preschool are concerned as he doesn't listen or have much eye contact with them at all, eats very little and climbs on tables/touches plug sockets/ does dangerous things. He shows interest in few of the things they try with him, as he's too busy running around doing what he wants.
When I say he shows little interest I don't mean he's lethargic & disinterested, but he's so busy doing his own thing he won't stop for you or pay you any attention.
He's also a very fussy eater (no fuss, just won't eat it) and alternately sleeps through or wakes up for hours in the middle of the night, full of beans.
It always takes him ages to fall asleep, after much kicking about, babbling & laughing in bed (luckily not often disturbing other son who shares room, poor little thing!).
As I said, we still have appointments with specialists but April seems a long way away. One minute I think he's fine, the next I'm worried about all sorts of issues.
Does this sound familiar to anyone who can advise me? Does it sound like there's something wrong, or will it just all fall into place soon?
Thank you for reading & any helpful advice you can give!
Xxxxx

OP posts:
defineme · 07/02/2015 07:32

I would be concerned too. I think because you have his older brother you have a comparison there.
keep writing everything down like him losing words etc.
I have 3 kids, eldest ds has asd, he doesn't sound much like your ds at that age, but every kid with sn is different and I am not an expert.

April is quite good in terms appointments. .. hang in thereFlowers

Frusso · 07/02/2015 07:37

This reply has been deleted

Message withdrawn at poster's request.

Rasell · 07/02/2015 08:04

Hi, thanks for your replies.
Have just got number for local portage centre, will call on Monday. I'd never heard of it!
Called doc for another referral to double check hearing yesterday, when we go will definitely ask about auditory processing disorder, some of it rings very true.
Thank you both :-) xx

OP posts:
chocnomorechoc · 07/02/2015 08:52

Some of the things remind me of Dd at that age (now dx of autism). Good that you have your referral. It might be something or nothing. Nobody here can tell you on here. But the phase where you are in is the worst... having this gut feeling. Not having appointments yet. Not knowing.

Do you have any idea what it could be? I guess you have consultrd dr google and now you do have some idea what it could be?

I think won't dx auditory processing disorder until much older (7 or 8).

chocnomorechoc · 07/02/2015 08:57

Do you think preschool is doing him good? From experience, preschool and nursery were the worst places for us to encourage speech and language for our Dd with significant communucation problems. Too overwhelming for Dd. Staff did not have the knowledge/experience/time to support Dd speech and language needs.

chocnomorechoc · 07/02/2015 08:58

It was the intense work with her at home in a 1:1 environment that helped her at that age.

Frusso · 07/02/2015 09:16

This reply has been deleted

Message withdrawn at poster's request.

chocnomorechoc · 07/02/2015 09:29

Didn't know that frusso. Paed always said it cannot be dx that young.

Frusso · 07/02/2015 09:34

This reply has been deleted

Message withdrawn at poster's request.

Bilberry · 07/02/2015 10:28

I agree about nursery/preschool not always promoting communication. So many people said to me "he will improve when he starts preschool" (along with "his sister's talk for him"). The reality is he was lost in preschool - 3/4 year olds are all about self and don't have the understanding or patience to deal with another child who can't communicate with them. Staff are too busy and don't have the expertise. This didn't come as a surprise and wasn't why he went. He did have the chance to get used to large groups before he started school and, most importantly, he was happy there. However, the real benefit for us was that it put him 'in the system' to get him assessed by ed psychs and school and get the support necessary to apply for a language unit.

2boysnamedR · 07/02/2015 10:59

A lot of what your saying sounds very familar to my gdd son. However your son is doing things mine can't as well.

My son has been under a neuro disability pead since he was 19 months. He has portage as well. Portage are great if they will take him on. They can assess and tell you where your son is and if that's significantly behind. He could just pick up in a few months. ( let's hope, ever hopeful here). My son didn't and is frozen at the age of a 9 month old. He is three in a few weeks.

My elder boy has dyspraxia hence early referal

sammythemummy · 07/02/2015 15:39

Hi,

Some of the things you've mentioned would worry me too. Dx or no dx if you have the funds, please look into intensive therapy as choc was saying, this has helped my daughter's speech and attention.

Rasell · 07/02/2015 22:07

Hi,
Thanks for the replies.
I don't know what it could be, no. He seems to show signs of a few things I've read about, but not enough to fit the bill.
I also don't know if preschool is best for him. Paed suggested it to encourage speech, but as that's not the only issue I think I might send him a couple of mornings for socialising, etc but not 2 full days as he does now. I do want more time one on one with him. When he pays attention he learns well - this morning I was brushing my teeth & he was watching. He brushed mine then his own (absolutely hated having them brushed before) and this evening did a great job of it smiling in the mirror with no prompting!
He played with a plane whose wings come off & said 'oh, dear' every time they did and took the phone off me to babble to my dad. But then several times I, his brother or his dad have spoken to him, loudly and from close range & he hasn't even blinked.
I hope that whatever it is that's causing him to drift into his own world & show little interest in anything else is definitely manageable as he can be so wonderfully interactive & playful when he wants. We just have to see what it is & do our best.
A particular thank you to 2boysnamedR. That must be incredibly tough for you all. I wish you & your little ones all the best xxxx

OP posts:
senvet · 07/02/2015 23:05

Remember, if your dc is different in some ways from the majority of the population (the mainstream or bog-standard folk) then his main difficulties will come difficulties navigating his way through the majority, mainstream world. And that difficulty is not dc's fault.

There is nothing wrong with dc. He may have difficulties because the majority-mainstream-bog-standard folk make incorrect assumptions or fail to be flexible enough to incorporate the way your dc operates. That is their ignorance and their loss.

Dc has some wonderful play skills and interactions there, I wish you the very best wishes in stopping the majority getting you down.

2boysnamedR · 07/02/2015 23:09

Thanks and your welcome, glad to be of any help. It is tough but its ok, I hardy know any different now as my first born is fine - but hes 11 so memories of a chatty little toddler have faded a bit.

My toddler is a right character. He is very non compliant (i.e never!) He is on his own agenda, he complies for no one - ever! Exhausting but at the same time I have to admire his free sprit. He never stakes blocks, makes animal noises etc or engages with us unless its constant tap tap on my leg and puling me to get him some unknown object he can't communicate.

What I have found recently is that he has had a leap in knowledge un known to me. He can point to things he couldn't a month ago. Some understanding has come on but without the language I didn't stop to check. I put out eight pictures and he could point to them when I named them. Both boys understood a lot more than their language suggested.

adrianna22 · 08/02/2015 03:08

Hi OP, your doing a great job so don't feel down.

There are some signs that are worrying, but it could be caused by a number of reasons or nothing at all.
But your doing the right thing by getting these assessments.

When DS was younger, he seemed to be developmentally on track, social/ interaction wise. Though they were days where DS would be "off" it in his own world, not very interactive. It was like he was two different people. But as he grew a bit older, especially comparing him to NT peers, his development around the social/ interaction and language was delayed and this is when I got worried.

Nursery did nothing for DS, it didn't help him socially, didn't help him with his language. It was more like a baby sitting if you ask me. I wish I knew about SEN nurseries back then. However, DS is in a mainstream school and has gained socially and it has helped a little with his language. So a different experience from what I had with his nursery.

I strongly advise you look at this site to give you ideas on what to work on with your child with his social/ interaction and language development.

www.teachmetotalk.com

Good luck OP.

Rasell · 08/02/2015 22:26

Thank you everyone for your replies.
I'm glad to have found you all for such helpful suggestions & insight. You're all very kind! X

OP posts:
OldAntiquity · 09/02/2015 09:17

Some of the things you have mentioned remind me of ds2 who now has an autism diagnosis, specifically losing some speech he had and being in his own world but also being fun and a great mimic. Have you tried doing the m-chat screening to see if there is anything in there, it's autism screening for toddlers.

I will say that whatever the issue Portage are awesome. They will work out where your child is at and do play work and give you something to work on. Like ds2 currently has describing what's happening in pictures as a skill to work on. It means no matter how many other things need work I have a goal to work towards with him and it stops it being so overwhelming.

My ds also has some sensory issues & repetitive behaviour/play

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