Too tired to fight anymore...... BUT know I must gird my loins once again.....

[eidsvold]

Spoke to the physio who was dd1's physio yesterday - bad news.

Dd1's therapy has been rather patchy this year but consistently we have had speech therapy - something dd1 is jsut going great guns with.

Until - her speech therapists goes to a job closer to home ( can't blame her - she has been very ill and travelling long distances to get to work making it much worse)

What me is that they are not replacing her with another speech therapist - so our equivalent of CDC - has one part time speech therapy to cover a huge area.

Dd1 has just started a program called prompt which needs a trained specialist SALT to deliver - and we have only done two sounds!!!! Her rapid increase in use of speech and her desire to speak is being put at risk by having no speech therapy.

So now I have to find a great deal of money to have dd1's therapy needs being met by private practitioners.....

I have overnight ( found out yesterday) written to the following:

Manager of CDC
state MP
Minister for disability services ( dept provides the services)
CEO of disability services.

So tired of having to fight for things that would just make life a little easier for all concerned.

It is not just dd1 who will be missing out but other clients of this SALT - and no one - that is the admin has bothered to actually tell us she is not being replaced - heard this from another therapist on the team.

too tired......

I'm so sorry, eidsvold. I'm sorry you have to fight for so much that should just be given and am appalled that you have not been properly informed of the changes.

Have nothing constructive to say, but wanted you to know that I had read this.

Hi eidvold
Does your dd have a key worker if so what does it say in her assessment of needs if it states that she requires speech therapy the jat team should be able to fund private if it would otherwise be unavailable.
Though i guess again it all depends on what area you live and how good the jat is in your area.
Good luck im sorry to hear you are having to fight for what your daughter needs sometimes it feels like a constant battle and when one ends its on to the next.

sue - I am in Aus and whilst the dept has recognised that she needs therapy - if there isn't a therapist - she can't get it. Other SALT is only part time. So dh and I will have to sit down and try and stretch the budget further if I get no joy from my lobbying.

Oh bugger i wasnt much help then ... sorry
hope it all comes together for you

and

How can they do this to your dd1 and all the other children in your area who are no doubt missing out now?

Why does everything have to be such a bl**dy battle?

That's so grim, eidsvold on your behalf.

I got the impression from Bloss that things were much better in Australia, but seemingly it's just the same old same old .

I dont have any personell experience of SN, but I am a parent and do know what it feels like to be "too tired to fight anymore" I always read these threads because I hate to feel ignorant and embarress someone?! I just want you to know I wish you well and I really hope anyone who needs SN threads does'nt choose to be locked away (dont know how else to put that)

genuinly hope I hav'nt offended anyone

dino - it was fab when we first got her - OT, physio and speech on a very regular basis BUT the physio had to have surgery earlier this year and they decided not to replace her as it was only temproray leave iyswim. The fab OT has decided to head off to the UK to live and work for a year or two - can't blame her - I did it. The SALT was ill and the long distances she was travelling was not helping her recovery.

I am wondering if it is something to do with the new manager that suddenly staff aren't staying.

well suprisingly I am better off here than other parents who have to travel for hours and have somewhat irregular appts. We are lucky in that we can access therapists through dept of health or disability services. Have not spoken to GP about possibly accessing the services through dept of Health. So that is another option.