Not sure if I

[blackCATsandbroomsticksJ]

you all seem so helpful and supportive to each other.
Some of you may have seen my posts on another thread but I will introduce myself.
I have 4 dd's (including twins!) and the youngest has a congenital heart condition. This was diagnosed when she was 12 days old (now 7 months) and she has been in hospital ever since-except for about 10 days at home in June. She has had 3 operations so far and been in and out of PICU more times than I want to think about. Hopefully she will be coming home soon which I am looking forward to but also scared s##tless about at times .
That's it really,can't think of anything else to add

Title should say "Not sure if I "belong" here but"

Don't know what happened there!

Hello blackCATsandbroomsticksJ. I don't have kids with sn, so not sure if I should now be posting here having read other stuff today, but just wanted to say 'hello'

Hi & welcome here. I have a deaf 7 y.o. and a hearing 1.5 y.o.

Blackcat, Socci and Christina, there is a post from JustineMumsnet on this thread special needs that might be relevant to you.

Welcome to Catj.

I remember you (and dd) from the March 06 ante-natal and post-natal threads.I'm glad to hear that dd will be coming home soon.

I have 2 boys with autism and dd who is a similar age to your dd.

Hi and welcome Cat. Those first few months are very hard, I remember them too well. It sounds like you have your hands full and your daughter has been through such a lot. It will be lovely to have her home sleeping in her own cot and surrounded by her family. I was scared to bring my ds home too, but they keep you so busy you soon get stuck in.

Another site you might be interested in is www.specialkids.org.uk which is specifically for parents of children with special needs.

welcome! hope you enjoy mumsnet!

Whoops, sorry, it's actually specialkidsintheuk.org

hi cat!

how is dd4?

Thanks for the welcome.

Misdee,dd4 is fine thanks. She is being a right little minx at the mo-keeps pulling her NG tube out! We had her home for a few hours on Sunday-I don't think she was too traumatised,she even managed a little snooze on me which was really nice. (I have PM'd you via HL btw!)

hiya - I have a 4 yo dd with down syndrome and a congenital heart defect - complete AVSD. She has had it repaired and it is doing okay for now. She was a right little minx and used to pull her ng tube out - thankfully when dh was around so he could put it in - used to make me gag just watching him do it let along trying to do it myself.

I have a 2yo dd who is NT - but a right cheeky monkey.

And another one babe due Mar 07.

Dd1 had her cardiac surgery at the Brompton - three long weeks spent living in the hospital in London - tough time.

We now live in Aus ( am an aussie) but were living in Essex in the UK until End of May 04.