Tribunal games. Going mad. Total mindf@uk

[2boysnamedR]

So tempted to throw in the towel. I won't but...

The lea dispute my son dx, they dispute his ot recommendations.

How? Have they / can they gain access to medical records I don't provide? How does he know these things? Did his pead with draw her dx and omit to inform me?

I emailed the nhs witness he called about the tribunal. La replied! Did he ask the big cheese to inform them of any attempt to get more info to help my case? Are they in cohoots? Or just her? Is some one high up in our nhs marking me up as a loon and the la and nhs on a mission to stop this?

He said my indi salt wasn't carried out in calm quite environment? Was he looking in my living room window? Has he tapped my phone? Has he hacked my email?

My toddler is going to panel for a speech unit. Will the lea say no out of spite over this? Is my portage teacher and early years help really spies?

If I get a statement will it be worth it?

Do I go along just for fun on the day after eating the contents of my toddlers nappy just so I can throw up over him?

Is the world going mad?

I sure am! I don't think my son has any specail needs after all! How lovely!

However it appears I am a mentally unstable loon with dillusion!

I think at this late stage they will try anything - this reeks of desperation. I know it seems like they are all against you but imagine how you will feel when the tribunal orders them to give your son a statement. Then imagine how much more progress he will make once he has an appropriate education. I know with all this pressure it is hard to think of the bigger picture but they don't really have a case - hence the adjournment.

This is just mind games.
The NHS witness obviously can't be trusted and if they have called her then she has to take their side.
He can't access any of your son's medical records without your consent and if he has then you have a right to complain. It sounds like a desperate attempt to try and discredit you and your evidence. What evidence does he have that your son doesn't need the OT? What evidence does he have that your son doesn't have diagnosis? Think about it. You have evidence to prove these things that he is disputing. He doesn't have any evidence to back up that they are not true. Saying your SALT assessment wasn't carried out in a calm environment is just clutching at straws. Your indie SALT can simply say 'yes it was' and they will take her word since he wasn't even present.
Don't rise to it because he will then start to say that you are unreasonable. He is making himself look like a twat of the highest order. Let him get on with it and try and stay objective if he contacts you. Try and get all contact to be done via email as well then you can choose to read them when you are ready and not last thing on a friday so you are wound up for the weekend. Although LA's seem to be allergic to written communications during appeals

Always work on the assumption that any NHS or school staff are working for the LA, and anything you say to them will get back to the LA. Don't show them your independent reports, except through the Tribunal process. The LA has a block contract with the NHS for speech therapy; and should have one for OT. These people usually have a mortgage and their manager has told them to toe the LA's line. It does happen that they tell consultant paediatricians to withdraw their diagnosis:

www.telegraph.co.uk/health/healthnews/5109442/NHS-trust-apologises-to-newsreader-after-changing-sons-autism-diagnosis.html

(You would have thought that a LA would have more sense than to do it to the child of two journalists, but apparently not!)

Adopt tunnel vision with regard to your dc's SEN and don't let the LA's desperate tactics put you off. IMO, the Tribunal can see through them. You are right and are the only person in this (apart from the Tribunal) with your dc's best interests at heart, with no secret agenda of saving money.

He has dyspraxia written on some reports but the peads dx was Dcd. She told me verbally it's the same thing. So la say it's never been diagnosed. But he has processing and language issues. He can't cross his mid line etc. I'm pretty sure the extra thing that make it dsypraxia are in his reports but it doesn't say he has dsypraxia. When I meet with ot and pead and we discuss his " dyspraxia" they have never correct me.

God knows how thinks he doesn't have these ot things. That's based on nothing.

He says I have never raised physical needs with school. I always do! Pretty sure it's backed up by email paper trail. More emails to dig out.

I emailed his pead to ask if the nhs are sharing his records without my knowledge.

Going to redate personal bits for further evidence!

If my toddler carrys on his path ( his older brothers path that I'm appealing for). I will roll my eyes when he can't talk at school age and is still tripping, kicking other kids in the teeth etc and say "boys eh? What can you do?"

Because THAT one is a total nightmare! Good luck covering up his "minor quirks" as u tell you his portage teacher doesn't like being smacked in the face and her glasses broken.

"Boys eh? Love their spirit"

Mind you I did think the parents at his joint portage group did give me that "boys eh?" Smile when the toddler stepped on another mums baby. When he ran around screaming with scissors in his hand, climbed on the table repeatedly, ran at full speed into another child and used said child as a means if stopping, and kicked another girl in the mouth. That was just in 1.5 hours

Oh how we all laughed. So much that some other mums haven't been back since. Possibly still doubling over with laughter at such high jinx!

www.nhs.uk/conditions/Dyspraxia-(childhood)/Pages/Introduction.aspx
From nhs page:
" Developmental co-ordination disorder (DCD), also known as dyspraxia, "

Anyway what is important is the 'need' and not the diagnosis!

The LA certainly can press the NHS to retract a diagnosis, this happened to us.
I made the mistake of giving dd's paed our indie OT and EP reports. The indie OT and EP had agreed with the paeds dx of dcd, sensory processing difficulties and dyslexia. The paed then retracted this dx in a report and sent a copy of this to the LA, completely disputing the indie reports. luckily I submitted the 3 previous paed reports that were in line with our indies and stated the same dx. I also highlighted to the panel how the dx had been retracted by the NHS without them seeing dd since 6 months previously! The judge commented about this being 'very strange' and didn't give her report any weight when making a decision as her reports were inconsistent.

My goodness how awful 2boys you are being exposed to similar to I was. I hope you find the strength not to back down but I know that's so much easier for others to say than to do.

No I'm not backing down. I heard tonight it took seven years for my lea to statement a deaf child who was in ms.

I feel like I have been violated. Fu@k them all for all I care. If we loose I will just focus in supporting him privately outside of school and stop sharing info with them. What's the point. I can just shrug when they tell me they can't understand him.

In a few more years my toddler will land on their school steps. Believe me, if he doesn't get a statement that's my ultimate revenge as they will not cope with him! I will make him go full time and they can crack on with him hitting and running off. I hope he gives them hell to be honest right now. I can try the "he's fine - it's all in YOUR mind" bullshit

When I say above that I'd make my toddler go to school full time - by that I mean I wouldn't collect him if I got the call that he'd kicked someone.

I would say I can't believe that. I don't think legally you can exclude him anyway, then hang up. I get the dyspraxic one to walk him in the next day because if they told mr Dcd his brother wasn't allowed in, Dcd kid wouldn't understand what the hell that meant. Oh double bonus thinking about it.

God I'm so bitter and full of hate.

DS1s EOTAS tutors were employed by the NHS and really were spies. I did a Data Protection on them and got copies of the emails. One particular tutor was sent in with the express purpose of knobbling me. I already knew that she had had a meeting about me with the EWO but the emails were a real eye opener. Clearly I was making it all up, was only concerned with tribunal rather than my son and was very 'negative'. He only received 5 hours a week but that was split over 3 days.

My negativity was not being willing to drive my son to see some albino marmosets housed next to the PRU they wanted him to attend as this would fit in with science work about the food chain. I asked her how albino marmosets fit into the food chain but she didn't answer because at that point a neighbour racially abused her because she had parked across his driveway because she couldn't navigate the shingle in our driveway in her high heels. So she was trying to destroy my family and I, as a committed anti-racist, had to give a statement to the police in her support. Even after 'turning the other cheek' she wrote a statement for tribunal saying that DS1 should not be allowed to do art but that art should only be used as a motivator. He is (I believe) a gifted artist and his art tutor now fully expects him to attend art college and have a successful career.

You have to keep going when these sorts of people are in charge of 'helping' your child.

Keepon what surprises me about your post is that they actually gave you those emails! My LEA seems to think data protection requests are optional...

2boys don't let them get to you. From their perspective it isn't personal - I doubt they recognise you as an individual at all (certainly not your dc). You are just a faceless enemy they are all out to defeat. But you are an individual and you have something they don't; a fierce passion to do your absolute best for your children. You can do this!

This madness you report, it IS real, and it isn't you.

Rise above it. Don't get angry. And try hard not to worry.

You should have heard some of the complete nonsense at my tribunal, creative accounting, EP's that had never met my son saying he was progressing well in a school that had no records of him.

This might feel personal but it is all in a 'normal' days work for the LA.

Do I need to counter every point that the la has made against my sons case?

Eg he hasn't got dyspraxia as it's stated as Dcd

He hasn't got physical issues yet he's under ot and it goes into school

He doing well yet they state his levels have dropped over a term

He has no language problems yet I have a indi report that shows two years in a row he's at 1% and a la report that says 2% and has fallen behind another year?

Do I have to defend these? As the lea just say it's all lies but it's in black and white on paper?

Yes. In a one page bullet-point summary submission.

You can use it to sum up at the end of the tribunal too.

sadly 2boys these are usual LA tactics - for both my last 2 tribunals I have done the same in my case statement at the final evidence deadline and dealt with every point the LA made and explained why they were wrong. it madness and just LA clutching at straws but the tribunal will see through it. the LA hope that if they just make you feel like you are going mad and are imagining it all then you will just give up and agree with the LA and lets be honest, how many parents are strong enough to keep going and deal with this crap? so parents give up and the LA gets away with it.

Yes - and definitely be armed with something that states that dyspraxia is DCD, just to clear that one up once and for all.

The nhs website states Dcd is dyspraxia so I'm guessing that someone higher up has ok'd that one ( sarcastic face).

Either this bloke is a complete novice or the whole system is corrupt to the core.

Like a skunk who gets eaten by a wolf, maybe I'm going to be eaten - but I will leave a nasty stink that's hard to wash off. If I'm going down then it will be with a bang.

Nothing to loose anymore. Plus I can't give in, it's not in my nature.

I'm dsylexic with a degree. I didn't get that by rolling over and dying when my teacher told me I was lazy and thick. Nothing more satisfying then proving someone wrong.

File a copy print-out from that NHS website as evidence. I think you can also make the point that it doesn't matter which label you put on it, the DCD/dyspraxia is part of an overall picture of learning difficulties which aren't being met in school.

Dyspraxia is a general term, preferred in the past by educational professionals and therapists, who caught on to the problem before the medical profession did, BUT it's often used in quite a vague way. So dcd and dyspraxia are basically the same, but 'DCD' is a much better diagnostic label, dyspraxia can mean whatever someone wants it to mean

'Developmental co-ordination disorder' is the more modern, quite specific term, and it fits into the main diagnostic 'disease' classification systems. Diagnostic criteria are here

The system from the World Health Organisation is officially preferred in the UK- it's called ICD 10: International Classification of Diseases, version 10, updated 2010. DCD is known as 'Specific developmental disorder of motor function' and coded F82, which means it falls under a subsection of 'Mental, Behavioral & Developmental disorders'.

The American system is often used in other parts of the world- including UK- as well, it's called DSM 5 (Diagnostic and Statistical Manual of Mental Disorders version 5, updated 2013- before that it was DSM-IV- but DCD was defined much the same in both versions). DCD in the UK has a prevalence of 1.7% - see here

So it's not your aped who's a novice, it's the idiots at the LA who appear to be using their own stupidity to whip up non-existent controversy, stress you out, and distract the Tribunal from analysing your son's actual problems. Now who would've guessed that might be used as a tactic

Paed, not aped