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Think 13yr old DD may have Asperger's. What to do?

5 replies

PinkiePromise · 23/10/2014 14:51

I hope that this is OK to post here. It has been suggested to me for a long time by several family members that DD1 may have some form of ASD, but I have been very resistant to this idea. Recently however, I am beginning to think it may be the case.

She is extremely intelligent and is G&T in many subjects including English, which is something that initially made me think she could not be on the Autistic Spectrum. Her language development was very early, which I think is not really in keeping either.

BUT she does have many other traits that make me really wonder. She has no real friends. A group of four girls who she sits with at school, but no social interaction outside school, no texts, phone calls, social media and definitely no meeting up with anyone, she says she is happy by herself. She had one friend in primary school and if we saw people from school in the street, she would look down at her feet and leave me to reply to their Hellos. I put this down to shyness. She genuinely seems to have no interest in having friends, which I must admit I find odd, because my friends were everything to me at that age.

She is also obsessive about things. When she was 3 she could identify every flag of every country in the world. I thought this was cute. She had an obsession with how high up her legs her socks were pulled when she was 5 or 6, she would be hysterical if they weren't identical to the millimetre. There have been various obsessions over the years. At the moment she wants to become a doctor, I have been into her room in the middle of the night and found her watching episodes of Grey's Anatomy. Any medical drama she will watch for hours. She is obsessed with anatomy and physiology and disease. Not just interested, she is constantly reading and studying about it and I have to nag her to stop to go to bed. But she has also developed obsessions about sensory things too. The temperature of her drinks has to be chilled. She keeps a jug of water in the fridge and when it ran out the other day and I suggested she had tap water, she just lost it, she was hysterical. We have a throw on our sofa which she cannot let touch her. I thought she was just being really awkward about these things, and really lose my temper with her. but I'm beginning to think that they are genuine problems for her.

She has no sense of humour. She cannot understand jokes because she says they are incorrect. She used to try and make up jokes, but she was just stating facts. She is gets really irritated that I think something can be funny if it's 'wrong' or doesn't make sense.

Sorry this has been long and rambling. Basically I am finding her incredibly hard to deal with and am not sure if what I thought was teenage awkwardness is actually something more. What would pursuing a diagnosis mean, are there benefits? I think she would be very upset if I suggested to her that this might be the case. I think I feel that if it was Asperger's I could begin to understand her a little better and maybe our relationship would improve. Thanks in advance for any advice you might have.

OP posts:
PolterGhoul · 23/10/2014 14:59

This reply has been deleted

Message withdrawn at poster's request.

PinkiePromise · 23/10/2014 16:34

Thank you Polter, I have read the other thread, but didn't want to hijack it with my own worries!

Does your DS have an official diagnosis and did getting the diagnosis change anything? I am really not sure how to broach it with her and worry that the process of getting a diagnosis might cause more trauma for her. I think she would feel 'labelled' and might resent my efforts to help. I'm just so unsure whether her behaviour is due to ASD or not and will it make a difference if it is?

OP posts:
PolterGhoul · 23/10/2014 16:44

This reply has been deleted

Message withdrawn at poster's request.

kleinzeit · 23/10/2014 18:52

My DS was diagnosed at age 6 and we didn’t have a choice – he was very challenging in school and we were told if he wasn’t assessed and supported they couldn’t keep him. You’re in a different situation and I do think that at 13 your DD needs to be involved in the decision about whether to seek a diagnosis or not. (Speaking as someone who had therapy myself starting at a similar age, though not for an ASC.) What’s her own view? Has she ever thought that she might have Asperger’s?

If she’s never thought about it, I would raise the issue in one of two ways.

If she is unhappy in herself you could go for “you are having difficulty with X Y and Z and it’s making you unhappy, would you like to try to find out why/see if you can get some help for it?” without mentioning Asperger’s at all at this stage.

On the other hand, if she is actually mostly contented as she is at present (however worrying to you!) it might be better to say something like “I was reading about Asperger’s and when it talked about people who do (this) and (that) it reminded me a bit of you - what do you think?” – where the (this) and (that) are phrased in a very positive way, like “focus really intensely on their own interests and get to know them inside out” or “have a couple of really close friends and are otherwise very happy on their own company” or “are extra sensitive to particular things like temperatures and textures” and see if she accepts the idea.

My DS is also very good at English - he's had creative pieces accepted for the school magazine and he is writing a novel! So it's perfectly possible.

lexie3 · 28/04/2015 00:13

My DD2 sounds very similar to yours. She is 12 (13 in May), extremely clever and extremely shy. She too has no friends, and practically everyone we meet assumes she has some sort of SN. Also, she has many sensory issues: DH had to literally carry her, kicking and screaming, out of the shops on Sunday because DD1 touched her hair. She likes routine and refuses to eat anything other than pasta for tea.
Is your DD immature? I would say mine is closer to the maturity of DD3, aged 5 than DD1, aged 14. It is very upsetting, because I always looked forward to when DD1&2 were older and we could all be 'best friends' but now i will never have that Sad
I should probably get her a diagnosis, but I feel like that will make it seem more real Sad

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