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HFA with behavioural problems - sorry it's long!

12 replies

Katsamjam · 16/10/2014 09:43

Hi all, new to MN and looking for some advice. My DS, 12 has a diagnosis of HFA with behavioural problems. He's incredibly bright but lacking in some social skills. Has an older sister and younger brother both NT, happy family life, late with speech, bit contrary but otherwise no real problems until he got to juniors. During year 4 behaviour was 'naughty', calling out in class, obsessed with justice, not listening to reason and getting into altercations with other children. He started having infrequent but violent meltdowns at home and we saw GP and referred to CAMHS. They suspected ASD but we had to be diagnosed through paediatrician so waited a year for appt.

He spectacularly kicked off during the ADOS and diagnosis was confirmed at the start of year 6. Before this point he had suffered multiple fixed term exclusions, been sent to a PRU on dual placement (actually quite enjoyed it) and threatened with permanent exclusion. SENCO useless, head completely in denial about any SEN. Ed Psych and behaviour service all observed and reported but no real changes were made. We wanted to pull him out but he was resistant to leaving even though he was finding it difficult to go in every day.

I applied for and secured him a statement but this only came a month before he left juniors. It is not a watertight statement but at that time his dad and I were thinking he may end up needing SS at some point. We visited the local SS and it seemed ideal for him, they had some really bright HFA boys doing well there. We still felt we had to give mainstream a go and he was in agreement with this.

He did two weeks then crashed and burned. He has been getting into fights with another child who caused him problems at juniors, and knows how to push his buttons. He has been out of lessons with 1:1 for last 3 weeks trying to build confidence, not coping with class sizes etc, but unfortunately two incidents with the other child at break have resulted in my son hitting and kicking him, and he's already had two external exclusions. They have called in Ed Pysch and asked for an emergency review of the statement, as its clear he needs full time 1:1 at present.

He does have some good days, but will not always respond to staff, has been going walkabout at school, anxiety is up and has been swearing and will shove people if they attempt to get near him. The school knew all about him before, and said they were geared up, but its as if they have had enough now and don't know what to do with him. The external exclusions are so detrimental to his mental health, it takes a long time to recover from them but school were not impressed when I asked if internal exclusion could be an option.

I'm seriously wondering if we try and limp to Christmas then look to SS? I know its early days but it's as though his behaviour is worse than it ever was in juniors. He says he wants to stay at the current school.

Out of school he's generally fine, he does have occasional meltdowns (usually when excluded) and trashes his room, swears and has kicked and hit me if I am in the vicinity, but never his dad or siblings. He takes mag/zinc/multivits and vegepa EPA. He's in sports clubs 4 days a week, they dont have any problems with him. He's such a lovely boy and I hate to see him struggling at school. Anyone made the move to SS and been glad they did?

OP posts:
adrianna22 · 16/10/2014 10:08

Oh wow your going through a lot!

Regarding specials, like a mainstream school, you are going to see some bad ones and some really good ones.

I'm going through the dilemma of deciding whether my DS, 4, would be best placed in a SS, even though he is doing quite well mainstream but has a severe speech and language delay and want him to have the intensive input.

The issues I've heard regarding special schools, is that they don't stretch the kids academically enough, as some kids do have behavioural and quite severe sensory behaviours and other parents- including myself- if our kids will copy their behaviour, will they get distracted- like my DS as he is EASILY distracted- would it cause anxiety problems for out kids and so on.

The pros I've heard is, there's intensive input, the staff know what they are dealing with, they have a better understanding and know what strategies to use, smaller class sizes and so on.

So if I was you, I would look at many special schools, ask loads of questions and see how you get on. Your DS is 12? So are you looking for a secondary special school?

OneInEight · 16/10/2014 10:17

Yes, with both my boys are now in indie SS's and doing much better. ds1 moved initially to a primary EBD in year 5 when he was permanently excluded and did really well there. He has recently moved to an ASD specialist school for secondary and continued to thrive - had one or two blips but is settling down now. ds2 lasted slightly longer in mainstream (with unfortunately detrimental effect on his mental health) but started at a specialist school towards the end of year 6. I can't say he loves it yet but he does engage in most lessons and interacts with his peers again having been totally withdrawn in mainstream.

Like your son my two found the exclusions extremely upsetting and damaged their mental health. It also in my view did not improve (probably had the opposite effect) on behaviour as it made them more stressed. I think unless you can get the school to understand that what they need to be do is decreasing anxiety rather than punishing I would be considering a move and sooner rather than later. The frustrating thing is there are some schools which seem much more able to do this.

Katsamjam · 16/10/2014 10:43

Thank you both for your replies! OneInEight how did you get your boys into indie SS? Did LA just agree it? I was told by county that I could name the local SS on DS's statement and would stand a good chance of him getting in there, not sure if I should be looking at other options. My understanding is that some ASD specialist schools will not take those with challenging behaviour. His behaviour all stems from his anxieties but he does respond to a firm boundary and I wonder if MS just has too many variables. Staff are great with him but he spends most of day ignoring any requests made to him and they're feeling a bit helpless. He has told me he does not want to move school but I do feel he may benefit from those smaller classes and tighter boundaries.
Thanks again.

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PolterGoose · 16/10/2014 10:46

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Message withdrawn at poster's request.

Katsamjam · 16/10/2014 11:03

Hi Poltergoose, yes I agree with you on that. He is so bright that I don't feel that time spent out of school would have a negative effect, and I have considered just pulling him out. It's really making it more difficult because he is going off to school no problem and once there it all goes so wrong! He's adamant he wants to stay there. How's your son doing now?

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OneInEight · 16/10/2014 11:43

Hi again, we got agreement for indie SS basically because there was no school in the LEA that could meet both academic and behavioural needs. It still took us most of Year 6 to convince the LEA which was frustrating for ds1 as it meant he had no transition.

A lot of the indie SS will do a trial period to see if they can meet needs. In the case of my two a lot of the behaviour was anxiety related so removing the source of anxiety has cured a lot of it.

PolterGoose · 16/10/2014 11:44

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Katsamjam · 16/10/2014 11:55

Thanks so much both, always nice to know I'm not alone! The local SS is a BESD school and although my son has no learning diffficulties I was impressed with the caring staff and firm boundaries. I just wonder if I haven't given it enough time in MS and he will somehow start to settle down. Polter, that's good news about your son is he is MS secondary?

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Katsamjam · 16/10/2014 11:58

OneInEight, were your DS's anxieties all based around school? I had thought it was the junior school that had caused the issues for my DS as they were so useless, but we appear to be going backwards with the new school. Such a worry isn't it.

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PolterGoose · 16/10/2014 12:09

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Message withdrawn at poster's request.

OneInEight · 16/10/2014 13:07

It would probably be unfair of me to totally blame school (doesn't usually stop me) as there were also major issues at home (I was having treatment for cancer the year my two really started kicking off at school). What we did find though that as soon as ds1 was removed from his mainstream school his meltdowns dramatically decreased. His last teacher just really did not understand his difficulties at all and was not flexible enough to accept that he needed to be handled in a different way. It was a great shame as he had had a teacher the previous year who worked wonders with him.

Katsamjam · 16/10/2014 13:21

Yes, its a difficult situation. I have been called to the secondary school so many times since he started 5 weeks ago, he is off again this afternoon excluded due to aggressive behaviour towards the staff. We cant carry on much longer like this. We have him (mostly) all figured out at home, so meltdowns are rare but he seems so low in himself. Just wondering if we should throw the towel in now before somebody gets really hurt at school or whether to plough on with more input and see what happens. School say they want to support him but he doesn't seem to want to get on board with any of it. Also considered medication but just don't know what to do for the best.

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