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likely ASD diagnosis

6 replies

Anomaly · 10/10/2014 17:39

It looks increasingly likely DS will end up with a diagnosis of ASD. Could anyone recommend good avenues of information e.g. websites, books etc.

OP posts:
fairgame · 10/10/2014 18:02

The national autistic society have a good website if you want a general overview of ASD.
Autism west midlands also have a good website.
Is there something in particular you need information on, or is it just general information?

Ineedmorepatience · 10/10/2014 18:08

You have found a great source of information right here! Grin

I have learned more from talking to people on here than anywhere else.

Good luck Smile

Tunna · 10/10/2014 18:14

hello and welcome to MNSN Smile

How old is your DS?

Anomaly · 10/10/2014 19:50

Hi, DS is 7. He's very bright and articulate but not making progress in school. He doesn't want to write if he can avoid it. He self directs at every opportunity. He seems to have friends but little sense of personal space and never follows the crowd. At 7 he displays some behaviour you would expect of a much younger child and isn't self conscious about it. I'm concerned that he's becoming increasingly anxious too.

Any advice would be great. He's already being seen by occupational therapy and they are the ones that strongly suspect ASD, he has a referral to a paediatrician, and I've requested a referral to an educational psychologist.

OP posts:
Anomaly · 11/10/2014 20:37

Just to bump this DS has become more anxious recently. I've bought him some worry dolls to help. How should I deal with his worries? At the moment we explain why he shouldn't worry but that just leads to another worry. Yesterday he was worried about ever being able to buy a house. I explained he'd have a job and now he's worried he won't get one! You eventually have to shut the conversation down otherwise you would be there all day.

Can I get him referred to CAMHS? While he's not that anxious I feel it's been getting worse over the past year and feel that as parents we need support to help DS.

OP posts:
peppajay · 12/10/2014 13:37

Anomoly- You could be describing my son. He is a huge worrier and panics over such little things he panics the bus wont stop at our stop and he panics that our house will get washed away in the rain, if I am not in the beginning of the q at school pick up time he worries I have forgotten him. He is 6 and doesn't play with any boys from his class, he plays with a few girls but lately he has started playing with a boy in reception and actually seems a little obsessed with him. Although he is a huge worrier he is actually very extrovert and loves singing and dancing and performing but this is constant now he seems to use his performing as a way to cope he is very quick witted and has an absolutely brilliant sense of humour and he is the life and soul and makes everyone laugh all the time but he doesn't know when and where to stop so this makes his behavior bad. He is so anxious yet so loud and confident at the same time. He was referred to a paediatrician in reception by the SALT as she felt there were several ASD traits there, he loves routine and used to have an obsession with trains however this side of it has got much better now. We saw a paediatrician a few times and filled in the questionaires and he was high scoring but as his routine and obsessions had improved she thought going forward to the next diagnosis process wasn't worth it as she thought the process which is quite long winded and stressful would probably stress him out more. School can cope with him fine and he loves school he is very academic and loves the learning and socially although he doesn't have many friends he is well liked but he chooses to play alone or with the younger children!! Although he constantly panics and cant cope if things go wrong he is generally a very happy boy and they both thought that if we went for diagnosis and got an ASD diagnosis and this was on his records it would do him more harm than good in later life because they can cope with him 99% of the time and at home we can cope but lately although his routines and obsessions have got so much better he has become much more of a worrier over really small things that didn't used to worry him. Sounds like school is being supportive- I sometimes worry that maybe I should have gone to the next stage for diagnosis for my son but then wonder what I would gain as he doing well in school. I think I would be more concerned if my son wasn't doing well at school so I think you are dong the right thing seeing a pediatrician and Ed Phsy. Good luck and let us know how you get on xx

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