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Posting on behalf of a friend - having problems with her dd. Please look!

11 replies

NextDoorNeighbour · 10/10/2014 12:05

I've name changed as I'm posting this for a friend.
She has an 8 yr old dd who has been having problems for nearly a year.

They've been to the GP who is fobbing them off, they were referred to CAMHS but this was turned down in favour of her being observed in school by a health visitor and youth worker.

My friend is considering going private, but who should they see?

The GP sounds like he is being very unhelpful, when my friend asked for more investigations said "what would a diagnosis prove?" and to carry on with the youth worker, who sounds like she is blaming my friend and her husband. Observations in school have shown nothing as, like so many children, the little girl only shows this at home.

She's written a list for me to write here, it's long, but I feel that she'll get more answers and clues as to what to do from MNSN. (I haven't posted this in behaviour/development as my own son is waiting for assessment for asd and there are some striking similarities between them, and I have had so much advice from you all here

  • Phobia about getting ill, other people having illness
  • Dislike of hair being washed, combed, cut, finds head being rubbed when drying hair hurts her head.
  • Wrings hands, rubs feet against each other until red, bites fingernails until sore.
  • Dislikes any form of change which may involve her.
  • Does not like to travel by bus, says she can feel every bump in the road and it makes her throat hurt.
  • Can be aggressive in her speech and behaviour towards her parents, especially her dad.
  • Has strong dislike of family dog, would actually harm him
  • Will not make eye contact with people she does not know well.
  • Sleep pattern can be erratic, some nights she will go to sleep very late but wake up early, says she hasn't slept only rested, although she will have had some sleep.
  • Does not like school, doesn't want to go and cries on journey to school. Once there is ok, but I believe she is putting mask on as can sometimes erupt once home.
  • Needs to know where Mum is at all times, fear of not having mum with her, will not go to grandparents at weekend as it means leaving mum, saying over and over that she loves Mummy, only Mummy.
  • Eating is very picky, will only eat limited amount of different foods, likes them not to be together on same plate or not touching.
  • Does not like her throat being touched even lightly, says it hurts.
  • Constantly complaining of lump in throat, stomach pain. This happens every day at some point. Tests on throat revealed nothing physically wrong.
  • Says that loud noises, eg. washing machine spinning, bother her as she can't cope with sound.

Thank you for looking, I'll be emailing my friend a link to this. Hopefully it will be useful for her!

OP posts:
NextDoorNeighbour · 10/10/2014 14:35

Quick bump.
Going to post this in other areas, my friend is getting to the end of her tether and could really do with some advice.

OP posts:
GoogleChick · 10/10/2014 14:42

Hi NextDoor...you say these symptoms have been present only the last year? Did anything happen at that time?

Some of the symptoms seem like separation anxiety which may be linked to something that happened then?

Not sure what you mean by 'Phobia about illness'?

Some of the symptoms sound like Sensory Processing Disorder although unusual to present only by aged 7.

The more I look at it all it seems like stress / anxiety related... did something happen or change about a year ago?

NextDoorNeighbour · 10/10/2014 14:55

Phobia about illness - (hopefully I get this right!) she worries about getting ill, or being near people who are ill (I think). One day with my ds she fell over and cut her knee and worried that she was going to bleed to death.

She had a nasty virus/possibly flu which seemed to trigger this. I'm not sure if any of the things on the list were present before then. The throat problem and sleeping definitely started after she was ill.

I think my friend has wondered about separation anxiety. I think it also coincided with her starting a new job and having to leave her dd at school a little earlier than she did before.

Any advice as to what to do?

OP posts:
PolterGoose · 10/10/2014 15:08

This reply has been deleted

Message withdrawn at poster's request.

NextDoorNeighbour · 10/10/2014 15:11

I'll suggest she comes and looks on here, but I think she struggles to find time to spare. I'll mention those books to her, thanks.

OP posts:
AttilaTheMeerkat · 10/10/2014 16:09

If GP is this unhelpful I would change GP practice. Its no point dealing with such intransigence. This is not so difficult to do nowadays. ASD is not always CAMHS area of expertise (and some CAMHS are far better than others) so they may not have been helpful in the long run but for them to suggest a youth worker and a health worker was an action that failed this family.

Once this is done I would ask the GP at the new practice for a referral to a developmental paediatrician for further evaluation. ASD cannot necessarily be ruled out here but she needs a detailed set of evaluations from someone like a developmental paed and in a professional capacity. High levels of anxiety can also present alongside ASD and there seems to be OCD here too. I would try and film her at home. My guess is that the gap between her own self and her peers has widen markedly in the last year so such behaviours are standing out more. These have likely been present long before now but ASD if present in girls is so subtle in presentation and is often missed even by professionals with years of experience.

How does she play with her toys and other children?.

I would also suggest her mother keeps a detailed diary of all her DDs behaviours at home if this is not already being done.

I would state that her additional needs at school are not being met as she erupts once home. To that end I would have a look at IPSEA's website and apply for an EHCP document. That will get things moving more as well.

NextDoorNeighbour · 10/10/2014 16:34

Thank you Attila, I'll make sure I see my friend tonight and ask her to have a look at this.

OP posts:
PolterGoose · 10/10/2014 16:40

This reply has been deleted

Message withdrawn at poster's request.

Ineedmorepatience · 10/10/2014 16:49

I agree with attila and polter I have a Dd with Asd, she struggles with anxiety and the older she gets the more her issues stand out.

Tunna · 10/10/2014 18:49

Another vote for the Dawn Huebner book, it helped me and the school to identify that many of DS's complaints of feeling sick were linked to anxiety.

Also ask your friend to arrange a meeting with the school to see if they are seeing the same types of behaviour. They can refer to OT and SALT to identify sensory issues and communication problems.

NextDoorNeighbour · 10/10/2014 21:37

As far as I know school aren't being helpful as they can't see anything wrong (except they can, as she cries going in), but I think it's that same old story that school doesn't acknowledge anything unless it's a problem for them, so I can't see them referring her to OT or SALT, but I'll mention it to her.

So for now is the best next step asking for a referral to a developmental paed.
If she went privately to get to the bottom of things what would you recommend? She's been recommended a psychologist (I think) would this be worth pursuing?

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