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SLI - just realising what this means to my DS

34 replies

Twunk · 02/10/2014 15:38

I don't know why I'm posting, other than I have had a moment of clarity and am feeling so sad.

DS2 was diagnosed with leukaemia just over a year ago and that had naturally taken over our lives, but during that time DS1 (6) has been diagnosed with specific language impairment.

We live in the Netherlands so much of the advice about getting help etc doesn't apply. He's just started year 3 which is when they learn to read and he's struggling. He can't blend the sounds and often forgets which letters make which sounds, and then can't actually say the word anyway.

I made the mistake of googling and all I read is how his life chances and education are going to be blighted. Sad

For background info - we speak English at home and our Dutch is limited, he attends a Dutch school which complicates matters.

His assessment shows that his intelligence is "high normal" (115 IQ in non-verbal test)

His vocab was limited but not severely - below normal though.

He LOVES talking in both English and Dutch. The issue is in both languages, though diagnosis was delayed owing to the mistaken belief (not by me!) that the bilingualism was the problem.

His problems extend to receptive language.

He is making improvements! Constantly. But the school are very concerned that he is finding learning to read very very hard. I'm still struggling with my feelings since DS2's illness started, and am not coping well with all this. I think I need some positive stories and suggestions for help.

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drspouse · 02/10/2014 16:01

Would you like him to get therapy in English? Could you spend some time during school holidays in the UK getting private therapy?

Twunk · 02/10/2014 16:05

I don't know if I should be confusing him at this point with another language Sad - we are here permanently and Dutch is far more regular than English so easier to learn.

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Twunk · 02/10/2014 16:08

He gets speech therapy (in Dutch). But I'm never going to be able to help him with homework and he's going to struggle. I don't think the guilt is helping.

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drspouse · 02/10/2014 16:27

From what I know (speech therapist friends etc. not professionally qualified though know a bit about the theory), it's really important for parents to do therapy with their children - therapy is a way of life not a once weekly session. I also do know that children who have special needs are no less capable of learning two languages.

When you say Dutch is "more regular" I think you must mean the spelling, which is a bit irrelevant to speech therapy, it's the speaking he needs now, from what you're saying, and Dutch is no more or less regular from that point of view.

Twunk · 02/10/2014 16:43

I think at the moment our main concern is that he's struggling to learn to read. We obviously work with his English, and he's made excellent progress, but reading is the issue as he's finding it so hard.

I feel so lost. I know I'm no use to him like this. It's so hard to process when we're still reeling from the impact of the leukaemia. It's hard to get perspective.

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PolterGoose · 02/10/2014 17:09

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Twunk · 02/10/2014 17:13

Thanks Polter - much appreciated Smile

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PolterGoose · 02/10/2014 17:15

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Twunk · 02/10/2014 17:16

And your help too drspouse - I think probably need to read up on English speech therapy in order to understand the difficulties he's facing. We've followed the advice of repeating back to him things he says incorrectly, we read to him (a lot) and use short sentences. He loves books and does seem to understand the stories - he asks relevant questions and gets scared, or laughs, at appropriate moments. Sometimes I wonder what the actual problem is!

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Tambaboy · 02/10/2014 19:15

Twunk, I know how you feel. DS is nearly 8 and in year 3 and still reading ORT level 2 books which are the type that a 4 y.o. reads. We did try a computer reading programme called Headsprout and he improved immensely in the first few months but now we have reached a plateau and he is not progressing. His instinct is to read m-a-n instead of mmmmmaaaaannnn. N-i-g-h-t instead of nnnnnn-iiiiiggggghhhh-t if you know what I mean so he needs constant prompting to blend the sounds . He gets d and b constantly mixed up. The list goes on and on...

His non verbal IQ is 135 but as your ds his receptive language is delayed.
Brought up in a bilingual household until he was a bit older than 3.

I don't know why he finds reading so difficult, it's depressing. The school is really helping him and we are finalising his EHC plan (like an statement of special educational needs).
I worry immensely about him so I know how you feel.

Twunk · 02/10/2014 19:57

Oh Tamba it's just so frustrating isn't it? I've assumed as he's bright and wants to talk and wants to learn all will be fine! But I've realised today that it isn't going to happen like that. And then you think of the future... I'm just going to have to adjust my expectations, and support him regardless. It breaks my heart to think of him crying at school because he just can't do it Sad

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Twunk · 02/10/2014 19:58

I wonder if phonics is the best way for him to learn to read?

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zzzzz · 02/10/2014 20:11

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Twunk · 03/10/2014 06:40

Thank you zzzzz - I am thinking phonics isn't the right way for him to learn. The words they did in previous weeks he knows! He can recognise them - it's reading out new ones he can't do.

He does forget the letters but they go in eventually, it just needs constant repetition.

DH tells me he cannot copy accents, could never read words out loud he didn't know, finds it impossible to read Dutch out loud. And in fact I've noticed I correct his Dutch pronunciation on the same words all the time. So I think we can see where DS1 gets it from! Good job he can already speak English! That's important here. I think we'd have a lot of problems with a second language...

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zzzzz · 03/10/2014 07:34

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Twunk · 03/10/2014 08:55

To say there are high frequency words in Dutch would be understating it somewhat. I think "leuk" "lekker" and "gezellig" are used to describe everything (or things don't have those qualities so "not nice" "not tasty" "not cosy" Grin

(Apologies to dutchies on here for grossly simplifying your language).

I love the pebble game!

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Twunk · 03/10/2014 10:13

Oh yes and I know the second language is a red herring - I've been saying it for years! But at least he doesn't have to learn one (depending what schooling he ends up in after primary).

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Twunk · 04/10/2014 20:19

Just bumping this to see if anyone else out there with experience

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tempe48 · 05/10/2014 11:02

Specific language impairment is usually specific to that child. For instance, you say he has receptive problems - where do these problems lie? Does he essentially have an auditory processing disorder - ie his hearing is fine, but the brain cannot accurately interpret the sounds coming in? A child might for instance hear - cat, mat, pat, hat all as "a". They don't process the consonants around it. They have to use context to guess that actually we mean cat here. Obviously, if the representation in the brain for cat is just "a", then they are going to have problems reading and spelling the word. Likewise, if they never hear "s", "ed", "ing" at the end of a word, they are never going to work out their function in grammar (hence a syntactical disorder) and have problems with reading and spelling.

Has the speech therapist said if he has a phonological processing disorder?

One of the other problems with a receptive disorder, which make its impact more long term than just an expressive disorder, is that the ability to form concepts is impaired - this will obviously cause more problems as they move up through the education system, when language gets more complex and abstract.

So, really the nature of the specific language impairment and its comorbid condtions can show up as dyslexia - which is likewise an umbrella term for a whole range of problems with reading, spelling and writing. Children with an auditory processing type disorder, who struggle with the building blocks of sounds, words and language may have dyslexia, but while reading is a struggle, they may get the gist of the story. Children with a top down processing disorder in language may have what sound like good words, good decoding but then struggle to get the meaning or gist of the story.

For instance, he may have poor auditory sequential memory - if you told him to go upstairs, get his socks, come down and put them on? This will impact on spelling (phonological problems apart) and writing, when he may struggle to keep the order of the words in the sentence in his working memory long enough to spell and write them down. Writing has a heavy cognitive load, because of the need to process the question, formulate an answer, assemble it grammatically, keep it in working memory long enough to write it down in the right order; spell the words and concentrate on the fine motor skills to write it legibly.

Tambaboy talks for instance about her son's struggle with blending.

He might though have very good visual memory, and learn to read words using advanced shape recognition (which most of us do, once we have moved past c-a-t gives cat. We don't have to break down and blend every word we read, as adults).

If English is his first language, I'd look at getting an English speech therapist to assess his language; and then get an educational psychologist, specialising in dyslexia to assess his other learning skills - to find out exactly what is going on in his language; and the knock on effects in reading, spelling and writing; and possibly maths. Some children can do arithmetic, but once you start wrapping up in language such as "Janet has 2 kgs of flour, but needs 3 kgs to make a loaf; how much does she need to buy?", they get lost in the language.

I can't give you a positive story, but if you explain his problems to him, so he realises its not because he is stupid; and give him strategies to get round the problems, it will help his self esteem - and help considerably through the education system. Also, tell him what he is good at and dyslexia is nothing to be ashamed of. I found "How to Detect and Manage Dyslexia" by Philomena Ott easy to read, with some good explanations and lots of strategies to get round the problems.

Twunk · 05/10/2014 18:30

Thank you Tempe for taking the time to respond so well.

His receptive language (I realize from what you say) is really not that poor - it's more that you sometimes need to repeat instructions as he wont get them right the first time. You can actually explain things to him like how things work and basic scientific concepts and he will get them.

His sentence structure is often poor and he does the classic mistakes with verb endings. He gets Dutch and English confused - for example using the Dutch "of" instead of the English "or" and says "all time" instead of always (directly translating the Dutch "always"). I correcting him by repeating back but he continues to make the mistake over and over.

He communicates quite well, makes lots of eye contact and LOVES talking. Seriously loves chatting - especially to adults. I don't know how unusual this is.

He's fine currently with maths but as you say, the questions are straightforward at the moment.

I will get that book you suggest. Thank you

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Twunk · 05/10/2014 18:36

I don't think I said that he gets very muddled when talking, especially when trying to tell a story. He can be very very hard to understand at that point.

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tempe48 · 05/10/2014 18:59

I can't tell, but he could for instance have a mild or moderate receptive disorder and may be a severe or profound expressive disorder. (DD has a moderate receptive disorder and a profound expressive disorder - we could not understand what she was trying to tell us, unless we had seen it for ourselves because her words were way off target, the sentences and paragraph so muddled, when she was a young child! DD loves talking; has always been very sociable and made lots of friends - most of her problems were with the building blocks of language.

Having to repeat instructions could be to do with poor working memory or auditory sequential memory and/or attention - common with language disorder.

Twunk · 05/10/2014 20:00

So I assume from this additional assessments would be useful? So we know what we're dealing with?

Sorry I know others have suggested it, but it's now becoming clear that I simply do not have enough information to help him properly, and we need to know how his brain is wired.

Thanks Tempe (and everyone)

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MeirAiaNeoAlibi · 05/10/2014 22:38

Neighbours dc had this diagnosis, and really couldn't read/write at more than a very, very basic level till half way through secondary school. Lots of difficulties there, needed an extra year in college, but finally 'took off' in late teens thanks to a part-time job and the use of loads of IT and multimedia stuff for studies and coursework. Lots of grey hairs for parents tho Wink

Graduated from uni 2y ago, now employed almost full-time, communication still hard work- but is upfront about this and politely assertive for the necessary (relatively minor) disability accommodations.

Twunk · 06/10/2014 11:36

Thank you MeirAiaNeoAlibi

I know, with us fighting his corner, he will get there. I have to believe that. Funnily enough we went to swimming yesterday, and he was chatting away to the chap at the desk. He said "Is he native English?" and I replied that both parents are, and he said "His dutch is very good! You can't tell". I said "You have no idea how well-timed that was! Thank you"

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