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Just started reception. Communication with the school.

8 replies

hazeyjane · 16/09/2014 20:12

Ds has just started reception in a resource base for statements children with complex needs within a ms infants school.

He has settled well after a few hiccups, but I am finding the communication with the school a little difficult. For example, ds is non verbal. Over the summer holidays he started to say yes and no, very unclearly but very definite! After the first morning at school, they reported he had said 'please', and I do think he has been making an 'eeee' sound for please. I then saw a report written by the advisory teacher that said that school had reported him saying 'more', 'bye, and 'naughty George!' (As in George pig). Now believe me I would love nothing more than for him to say Naughty George out of the blue, but he didn't say it and school have said that he didn't say it, but there it is written in a report. There was a concern when we looked at the resource base that they didn't seem keen on using Makaton. In fact I kept being told about a girl who had no speech when she started, who refused to use Makaton, but they worked with her and she started speaking. This was always said in such a fashion as to suggest that if only we would, stop using Makaton, ds would suddenly start speaking. Ds's SALT at the time was concerned about this and ensured that it was written into ds's statement that Makaton would be used at all times, staff would be kept up to date with training, and an AAC device introduced with training for staff. By the third day of school a comment was made about how, 'maybe ds won't need the signing, we told you his speech would come'.

This week ds has started lunches, he has always been very fussy, only eating a list of about 7 foods, he struggles with textures and smells, and we have an appointment with the dietician at the end of the month. I signed ds up for free school meals in the hope that he would at least try some of the new foods, in a different environment and surrounded by his peers. Yesterday at pick up, I was told he had eaten shepherds pie, carrots, and a whole banana. Up until yesterday ds wouldn't even tolerate a piece of banana on his plate, had never eaten carrot and wouldn't touch something in sauce - so hallelujah....except on asking ds, he signed 'no' to 'did you eat banana?' And the same to carrot. And, I must admit I would be amazed if he could even cope with banana as with his low tone, he struggles with claggy textures. Today I was told he ate lunch, which was pasta (which he has never eaten) and meatballs (which he has, without sauce). He then spent the rest of the afternoon crying and crying and signing biscuit, and I have a feeling that if he did eat the pasta, it must have been only a tiny amount.

I really need to know what he has eaten, for the dietician (who wants a food diary), and also because if he isn't eating at lunchtime he is going to be bloody starving, especially when he starts doing a full day.

This is incredibly long I know, but I really worry that school are so desperate to be uber positive about how well he is doing (and he is doing brilliantly) that they are being over enthusiastic with the truth, which is going to be detrimental in sorting out the best support for him.

Any suggestions for how to talk to them about it would be great. Setting it all out like this has already helped to be honest!

OP posts:
autumnsmum · 16/09/2014 20:26

Hi would it be possible to ask for what mini hazey has eaten to be written down and say it has to be medically precise for the dietician? Sorry not much help

hazeyjane · 16/09/2014 20:35

It is a help, Autumnsmum. I had thought today about getting them to write it down, with the amount as well. In fact if I had a copy of the food diary the previous dietician gave us, it had a column for amounts of food eaten so they would have to be precise.

OP posts:
autumnsmum · 16/09/2014 20:42

Also with the makaton it has been proved that signing helps develop speech rather than stop it developing

itiswhatitiswhatitis · 16/09/2014 20:43

I think in your position I would stop school lunches and send a packed one and ensure that anything your ds leaves is left in the lunch box so you can monitor what he has eaten. I signed my ds up for the free school lunches to in the hopes it would encourage him to try new foods but he just went 3 days without touching anything!

The makaton issue is quite serious in my opinion and I would try and arrange a meeting to insist that it is used. I was always assured by ds's SALT that using sign language would not discourage ds from speaking by himself.

PolterGoose · 16/09/2014 21:25

This reply has been deleted

Message withdrawn at poster's request.

hazeyjane · 16/09/2014 21:35

Thankyou.

The speech issue is complicated by the fact that his SALT left her job 3 months ago and he has yet to get a new one. His lead professional also left her job (I am trying not to get paranoid!) and so the transition meeting that was arranged fell through. I have arranged another meeting for 2 weeks time and have managed to persuade most of the professionals to come, and today found out who ds's new SALT is and have said she needs to be there, and nedds to have met with ds and I beforehand (it is a bloody ridiculous situation in a long line of SALT fuck ups). I explained to the SALT department, that I was concerned that the school were not 'on board' with the idea of makaton and AAc devices.

The resource base is lovely, and ds is happy. But it does amaze me that they have this negative attitude to signing. If it hadn't been for ds's separation anxiety I would have hoped for him to go to a special school that had an ethos of total communication, but at this stage I don't think ds would have coped with the transport.

I have found a copy of the dietician food diary form online, so I will print it off and give it to them tomorrow, stating that they have to fill it in as accurately as possible with amounts, and see what happens for the rest of this week (when he will be home at 1 anyway), then think about switching to packed lunches.

OP posts:
PolterGoose · 16/09/2014 21:39

This reply has been deleted

Message withdrawn at poster's request.

hazeyjane · 17/09/2014 11:50

Gave form to school this morning. The TA who sits with ds for lunch said that he ate a whole bowl of spaghetti and meatballs yesterday (if that is the case I congratulate them for the pure white tshirt he came home in, he can't eat a pork pie at home without getting covered!)

I explained that it is vital that every spoonful is written on the form, and that it is accurate, as he is lacking certain nutrients and this needs to be assessed by the specialist dietician. I asked about fluids because he is constipated. The ht replied, 'not here he isn't, there is always some poo there!' I pointed out that this is due to impaction, and when he gets blocked there is always poo that leaks around the blockage (sorry tmi!), he is on 3 sachets of Movicol day, and it is really important that he drinks lots of fluids, she then said that actually he doesn't drink at all at school as he is reluctant to drink just water. So I will be taking some juice in tomorrow and a measuring cup so that we can know how much he is drinking.

Gah!

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