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Here are some suggested organisations that offer expert advice on special needs.

I'm really struggling with ds. Warning long

2 replies

mumof6needssanity · 25/08/2014 22:17

Hi,
I would really appriciate advice pls, this will be long so you have background.

Ok when ds was 3 we got him referred to see a pead as we suspected, asd. He was obsessional with cars, all had to be the same type, cars were lined up in same length and width lines. Very self limited foods which could not be touching. Putting inedible objects in his mouth. Strong dislike to noise. Poor fine motor skills. Violent Meltdowns. Has to be in control eg first out the door. Needs to know where we are going. Wont walk will either sit down or run off. He holds it together at school but meltdowns either as soon as we get through the school gate or at home. I could go on and on tbh

Ok this pead said ds scored highly enough on ados to be given an autism dx but wanted to assess him in school to. When they assessed him in school he was as usual following the rules and doing as teacher said working in a small group with an adult. As a result of this paed said his social communication was too good to give the dx. Paed did refer him to ot who said he has sensory processing disorder. Paed said there is definitely something 'not right' also mentioned ADHD and dyslexia. All I have in writing from pead is sensory issues, behavioural problems and anxiety.
Pead then took ds off the books and sent him to anxiety and depression path route they have assessed him and have sent me a report which is just a written report of what was said at the time and they could offer my a cbt course we could use with ds. This was in May we have heard nothing since.

Ds is getting worse the other day during a meltdown he threw a toy at my 11 week old baby and split his head open. Thankfully baby will be ok other than a scar. Everyday ds has a meltdown he, screams, shouts, cries, but mainly hits, kicks, throws objects and hits me with objects. I have a lot of bruises, the walls are full of holes where he throws things, light bulbs and windows smashed. Last week I had a mattress and a tv thrown at me today it was a stairgate he pulled of the wall.

I have requested a second opinion twice the first time it got lost.

I have chased this up and contacted cahms, the anxiety clinic and the centre which first assessed ds to try and get help. I have been told if he was an adult then a crisis team would be involved but they don't have one for children. They have also said he is dangerous, like i don't know that!

Where do I go from here? How do I get someone to listen to me? We need help?

OP posts:
PolterGoose · 25/08/2014 22:41

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mumof6needssanity · 25/08/2014 22:53

Hi Polter,

Thank you for reading and replying.

Ds is 6 now, he does get some support in school but it is very sporadic. He has an Iep and is on school action plus. They started a social group for him but it only lasted 4 weeks!

I have recently been taking photos, videoing on my phone and writing down incidents.

We saw an ot once for about an hour she suggested something's like a sensory den and weighted blanket for home but he doesn't like them. The ot said he is visually easily overstimulated so all the displays on classrooms walls dont help him.

I always use emails with the school but yes doing it with the medical profession is good advice.

I will look up that book thank you.

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