Is it normal to be in denial?

[emkana]

I still have moments where I'm thinking "Maybe ds is completely normal after all", when it's clear that that can't be right - his limbs are clearly short, he has ongoing health problems...

is it normal to be like that?

YES

I have no experience of SN, but I would imagine it is very normal, emkana

Yes, totally. Even after my DD was diagnosed visually, it still hit me when I got the written confirmation. Now that she has started full time reception in a mainstream school (with a statement) I still think that may be she hasn't got Sotos as some other children that have the same condition don't walk, don't walk, don't socialise. She does all these things. I still sometimes think I am in denial but then on the other hand I totally embrace everything about her and her condition and think "yes, she has got Sotos but, luckily for us all, her included, I do believe quite mildly". Our next genetics appointment will be in January/February next year, just to see how she is getting on.

Absobloodylutely normal Em.

Especially seen as you have no formal dx yet.

emkana, I forgot to say, arabica was asking how you were when I saw her on friday..she's not on here much these days, but seemed well and esja is lovely

Oh gosh yes

I KNOW SD has huge issues on an intellectual level, yet do I completely believe it (as opposed to thinking it's my iamgination / fault / or as the H4ead Teacher syay, due to my non attendance of aprenting class )? Course not. It's an amazing ability of Sn aprents this, the ability to believe and yet NOT believe on two separate levels

Either that or I am barking LOL!

Thanks for letting me know, bundle

YES
I can also tell you that for us the firat 3 years were the hardest - coming to terms with it, helping dd with her limitations - moslty physical and then accepting, and just getting on with everything at her pace
Now I get a bit surprised when people mention it, as I do ahve days even weeks where I forget she has Noonan Syndrome at all. She is 4 next month.