Angry over DS ADOS report

[adrianna22]

Hi

I received DS second finalised ADOS report. Though pissed off at the moment as the doctor did not correct the changes that I insisted, when I had a first look at his draft report.

What do I do? Is it too late for her to amend the changes his report has already been sent to numerous professionals regarding DS, I.e. Doctors, school, etc.

Thanks

Plus school is starting in September.

What do you think s/he needs to change? I agree with Polter -if it is a factual inaccuracy, fair enough, but a professional opinion should stand unchanged.

When I do an ADOS it is based on exactly what I have observed during the assessment. So even if the parent disagreed I would not be able to change it.

Was it definitely the ADOS he completed? It would have been an individual assessment with your child where he had him complete different tasks and he observed the response. Usually done along with another professional or recorded if not.

Adrianna, do you think it would be helpful to find a local support group for parents with SN? You seem to be finding the diagnostic process very distressing. I know you aren't happy with an ASD diagnosis.

I think I need to explain properly.

I have gotten over the ASD diagnosis.

Even though I'm talking about the ADOS report, I'm not talking about the assessment.

The doctor left a commentary/ introduction about DS. She asked me some questions about DS, there was a bit in the introductory that the report said which I said, was false I.e. " .....Mother reports that DS is not a good sleeper...". For example.

This has nothing to do with the assessment notes itself.

I told the doctor that I know this is something I would not of said, maybe they thought that I must if implied if some how.

But again, this is nothing to do with the ADOS assessment itself, just the bit where they add a huge introduction about what parents say about their kids.

Should of explained better

I told her about this change and she said she will sort it, but she hasn't.

Regarding the who I would like the reports to be sent to. She kind of swayed me, I.e. I didn't want the report to be sent out to my GP practise as they are very judgemental and hope to move to another Surgery. But she just said that they have to know about this report.

Hi Polter goose

I used the sleep issues as an example.

I don't want to put the actual thing she wrote incase she may be looking In this forum. But it was definitely in along the lines "mother reports.....".

Plus on a separate sheet of paper, when they call the parents back to discuss the report, she actually put down that the mother agreed with the report, but wanted to make one change. Which was that one thing. But in no way did she change it.

But yes she put it in writing.

Though it is evident to me, when looking back at the report. She did not amend the change.

I'm just a bit pissed off about it to be honest.

Ok well when I have made a mistake in a report I have sent out a revised one with a covering letter to say that they need to dispose of the first report and use the up to date one. In the covering letter I also state the error.

If you have been misquoted then I would ask the Dr again that the report is revised and anyone it is has been sent to is contacted with the new one. If this is not done then contact your local nhs patient liaison service (pals) and make a formal complaint. I have had to do this recently and they were very friendly and easy to talk to. They have followed up on what I said with a formal letter and are investigating. I would give the dr one more chance to make the changes before complaining formally though.

How significant is the error? Does it matter in the grand scheme of things?

Thanks Missbluebird I'll do that.

Lougle Even if the details are minor. I'd like the report, on my part, to have a fair representation of DS.