Not sure whether to feel pleased or disappointed that dd may not get her DLA renewed this year.

[QueenEagle]

dd has received dla for many years now. As well as all her waterworks being knackered up she had a duplex kidney and ectopic ureter (congenital abnormality) and subsequently had an op to remove the dead part of her kidney when she was 3. Since then she has been incontinent and had 3 years with an in-dwelling catheter and numerous operations to investigate and/or correct various parts of her "downstairs".

She had a disabled badge for 3 years during which time she received the highest rate personal care and lower rate mobility. When she had her catheter removed it felt brilliant as it obviously meant she was so much better at that point. 2 years ago her payments were reduced to the lowest level for personal care and I am reapplying again now.

In many ways I feel a bit guilty for continuing to apply for it as she is so much better now but then again there are some areas in which she does need a bit of help. She is incontinent to varying degrees depending upon what she is doing at the time. At the age of nearly 15 you can imagine how this impacts on her.

I will still have to replace her clothing, bedding and mattress frequently and deal with her fragile emotions when she hates having to cope with it. At the same time I hate it that she is labelled as disabled.

Not sure how anyone can help me really but I was just filling the form in and thinking about this....

It sounds like you should be entitled to it

At the end of the day you have to do more for another 15 year old

It sounds as though you are more than entitled to it. Even though things are easier now your dd still needs more help than her friends/classmates.

Those DLA forms are vile in the way that they make us focus on the negative stuff. Good luck. xx

I feel she should continue to get. Point is, will the dla people think she should. Having improved so drastically over the last 3 years they may feel she has improved enough not to get it anymore iyswim?

Fact is she needs more care and attention than an NT child her age
end of
You're entitled

My dd is a delight, no trouble I feel very guilty about getting higher mate mobility for her and middle rate care
But fact is she has terrible eyesight and nowhere near as much strength or balance as a nearly 4 yr old should. She cannot walk any distance
It's there for people like us QE. don't feel guilty
Ps am chuffed your dd has done so well x

It's not compared to what she was a few years back, it's what she is now and how that compares to another teenager her age, she clearly still deserves it on that basis.

Don't fill it in whilst in this mood though, leave it a day or two. then compare her with what you were like at 15, rather than just the improvements.

Lass deserves the extra help, and if she goes to Uni etc that disabled label will help with grnats, accomodation and allsorts.