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Autism - Am I Being Paranoid?

26 replies

Hedger · 19/06/2014 21:27

I am pretty convinced by 18 month old DS has ASD. My concerns are that he has never pointed, has no joint attention (e.g. has never brought us a toy to show us), doesn't have very good eye contact, has no words, doesn't understand anything we say (other than "no"), etc.

We took him to see a NHS developmental paediatrician the other day and she refused to refer him to the autism team, saying she thinks he just has a delay in speech and understanding.

I asked why she thought it wasn't autism and she said because the children she saw with autism "ran around the room screaming", had tantrums and had problems with sleeping and food. She also said DS is clearly very attached to me and DH (which is true) and she thought he did have some non-verbal communication (this was based on the fact that he tried to take a toy from her, she kept hold of it trying to get him to ask for it, he gave up and turned away and started crying (during none of this time did he look at her at all) - apparently this is communication of sorts Hmm)?

Is it just me or is this a very ignorant view of autism for a developmental paediatrician to have? I know that a lot of children with autism do very obviously have autism in terms of stims, screaming, having tantrums, not sleeping and having problems with food, etc. but surely that is not at all part of the diagnostic criteria?

It was the sort of thing my know-it-all MiL says - "oh he can't have autism because he gave me a hug this morning" - but I really expected a bit more from a developmental paediatrician?

Does anyone have any thoughts? Am I right to not trust this doctor's verdict or am I being unreasonable? We are going to see Daphne Keen next week (privately) so it will be interesting to see what she says in comparison.

OP posts:
bjkmummy · 30/06/2014 11:52

I have always said that a mums instinct is never wrong - my younger son saw a paed at 2 and like you , no autism but some communication delay he then went to a SEN nursery and at age 4 they say not ASD (still have the letter!) and he was booted off to mainstream then aged 8 he was finally dx with ASD and the report states that if he have been properly looked at at age 2 he would have been dx. now aged 10 hes in an independent ASD school!

glad daphne keen went well - we are seeing her on 19th September for my sons twin sister. after everything we went through with her brother I cant bear the pain of her being seen via the NHS route.

now you have a dx and at such a young age things can now be put in place for you son and hopefully he will get the early intervention that can make a huge difference

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