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Advice on schooling for child with absence seizures

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SamVJ888 · 19/06/2014 21:18

Really hoping someone can give me some practical advice. Dd was diagnosed with absence seizures last year and has had a few grand mal seizures since then too.

I've fully engaged with school, spoke to school nurse/doctor about her medical needs which I'm confident they have in hand. I've also spoken to her head of year on four separate occasions to explain her situation, what support she needed and what can trigger the seizures (stress/tiredness etc) and specifically talk about her educational needs.

Dd has recently had her end of year exams (she's 12) and done badly in most of them, she had a grand mal seizure the day before the exams started which I told school about immediately and I know she's been having absence seizures during her tests which has effected her results. She revised for weeks before the tests and I know she knew the vast majority of her subjects inside out, I've also got copies of her exam papers and when I've gone through the questions with her one to one she's known pretty much all of them.

To say I'm furious with the school would be an understatement, I feel they are really letting my daughter down and not allowing her to reach her potential. I'm under no illusions that she's a genius but I know she's much brighter than her results suggest and she's now potentially going to be put in low attainment groups which will do nothing for her confidence.

To make it worse (well in my mind) school hasn't had the good manners to get in touch with me despite her poor results, considering the fact I've spoken to them so many times I would have expected them too. SEN doesn't really apply as it's a private school but any advice would be appreciated (short of shouting my mouth off at the head which I'm currently inclined to do).

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