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Sudden food refusal ASD

7 replies

Yarnie · 19/06/2014 08:23

Hi all.

My 5 year old son is autistic and has some oral hypersensitivity issues. He has had a somewhat restricted diet due to texture preferences, but he eats a balanced diet and better than several NT kids I know. We have been doing an OT programme which has helped with some oral motor issues (e.g. day time teeth grinding).

Anyway, 10 days ago, I think he had a stomach ache (his therapist and I had one a day or two later and the symptoms seem to fit). He refused most food at the time, and has eaten very inconsistently since then and often barely at all (a banana a day, sometimes. Occasionally, a meal or part of one).

I'm pretty sure he is completely fine medically now (he has no bowel problems and seems otherwise fine, except for tired because of a lack of energy). I have ruled out sore throats and toothache.

I suspect not eating much has inflamed his oral hypersensitivity. He is also getting upset when anyone eats near him, which is new.

So far, I have kept the pressure right off and have offered him meals and snacks as usual. I have tried not to offer repeatedly at one sitting or give him too many unusual treats. However, I am concerned that the refusal behaviour will become entrenched and would quite like to tackle it ASAP.

We are an ABA family, so I am prepared to use reinforcers and do it that way. However, I have always been wary of using ABA in a food context. It's so easy to pathologise food, that if we weren't having many problems, I didn't want to fix what wasn't broken (and risk introducing new problems). However, things have changed now.

Has anyone been in a similar situation with sudden food refusal? Any advice?

OP posts:
lougle · 19/06/2014 09:37

I think that a lot of children react badly to a bug/stomach ache and refuse food as a result, so I agree that it's not necessary to 'pathologise' this.

Have you tried offering a small selection of his preferred foods as a 'buffet'?

How verbal is he? Can he tell you what is bothering him?

zzzzz · 19/06/2014 09:45

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Yarnie · 19/06/2014 14:06

He barely had a stomach bug, I think. One slightly loose poo, but he obviously felt off-colour and may have eaten at some point and felt worse for it. This was 9 or 10 days ago and I am pretty sure he feels fine now. I doubt he feels nauseous or anything like that. However, his appetite has obviously shrunk, and I think the primary issue is that his oral hypersensitivity is really bothering him.

He has never been motivated by food. We've never used food as reinforcement (wouldn't have worked if we did). He does not really have favourite foods so trying to "tempt" him doesn't really work.

I have asked if things feel funny in his mouth and he says yes. He is an unreliable narrator of his bodily sensations, but I think this is the issue.

He will eat ice cream, but I am reluctant to give it to him outside of times I usually give it to him. He had one on the way back from the park today, because that is something we do sometimes.
Our OT is coming tomorrow and our ABA Consultant is coming on Monday, so I'll listen to their advice, but if anyone has been in a similar situation, I'm all ears (eyes).

OP posts:
PolterGoose · 19/06/2014 14:29

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davidsotherhalf · 19/06/2014 14:32

would he enjoy making his own food? mine liked doing a variation on pizza, a bun cut in half and spread with ketchup, top with cheese, ham or pepperoni tomato, pop in the oven, they also liked filling pitta bread with chicken and salad or whatever took there fancy at the time.

Yarnie · 19/06/2014 15:08

Davidsotherhalf, I'm afraid he doesn't like cooking, not even baking cookies and things like that.

Poltergoose - I had not considered wobbly tooth. Will investigate.

OP posts:
Yarnie · 19/06/2014 16:51

Meh. Not a wobbly tooth. Good suggestion, though.

I think I am going to offer normal food from now until the end of the weekend in small, non-threatening quantities and use his iPad as a reinforcer. If I don't see any improvement, than we'll go back to square one and start introducing textures gradually.

There is something about food refusal in children which prompts such primal horror in parents! Feeding is what we do. I'm trying very hard to be relaxed...casual, but I know I'm not fooling him, and he's such an anxiety sponge. I kept him off school today because I was worried about him, but I'm sending him in tomorrow. I think he needs "normal", even if he isn't eating, and I'm finding it hard to be normal!

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