Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

How robust are CAMHS assessment for Asperger Syndrome?

9 replies

LumieresForMe · 12/06/2014 17:03

Just had the feedback from CAMHS for dc2 assessment as not being on the spectrum.

Which is great in one way. I don't particularly want him to be on the spectrum.

But their assessment seems to be very far from our day to day experience of his behaviour.
Not sure what to think now Confused

OP posts:
PolterGoose · 12/06/2014 17:16

This reply has been deleted

Message withdrawn at poster's request.

LumieresForMe · 12/06/2014 17:23

Multidisciplinary.
They've used the SALT results I gave them even though it hadn't been done for that (the reason for that private assessment was that I was wondering about some languages issues as he a bilingual)
A review with me where I felt the questions were very leading and not giving me the opportunity to say what was wrong.
Assessment in class but not on the playground.
Assessment going some sort play/interaction.

OP posts:
LumieresForMe · 12/06/2014 17:25

They seem to have gone along the school stance which 'this child is fine. He is just shy and quiet'. It very much felt like they thought I had made a big fuss out of nothing....

OP posts:
PolterGoose · 12/06/2014 17:36

This reply has been deleted

Message withdrawn at poster's request.

LumieresForMe · 12/06/2014 17:51

Ok so what would you have expected from the assessment?

I've given up with CAMHS, not worth the effort.
If it's worth doing a private assessment, then I will but don't want to put pressure on ds2 unless necessary.
Especially as, for me, the reason for the diagnosis isn't help at school, a TA etc but knowledge to give him support the right way and for him to be self aware.

OP posts:
jomaynard · 12/06/2014 18:04

If you think it is wrong, then I would start by treating him as you would if he had the dx at home. (It can't do any harm, unless you use drugs.)

My DD was diagnosed via CAMHS - by a psych who was better for me than he has been for others I know. Were you given the option of going to a paediatrician?
We were pretty much diagnosed as a result of school and home questionnaires - but he'd spotted it at the first meeting which wasn't for ASD.

I think to be honest if there is a problem it tends to become more obvious as adolescence approaches.

Also did they say he definitely wasn't on the spectrum or that there wasn't enough evidence for a diagnosis?

PolterGoose · 12/06/2014 18:06

This reply has been deleted

Message withdrawn at poster's request.

Ineedmorepatience · 12/06/2014 18:43

I agree with polter as usual Grin

Dd3 was eventually diagnosed by CAMHS and I have to say they were pretty good inour area. Dd3 had already had multiple assessments by SALT and OT and been observed in school by a paediatrician who had already decided that we were fussy parents. She was led by the school.

I went to meet the mental health nurse armed with Tony Attwood and a million post it notes, I had gone through "The complete guide to Aspergers" and made notes on every bit that matched Dd3.

The MH nurse did take me seriously and after a few meetings he referred us up to tier 3 and a Psychiatrist diagnosed her using a DISCO assessment and the other assessment reports.

It took a year to get through CAMHS and 3.5 yrs in total to get Dd3 diagnosed. She has a diagnosis of Asd not aspergers though as the psychiatrist didnt think she was obsessive enough for Aspergers!!

PAH! She should try living with her Grin

Good luck and dont give up Smile

LumieresForMe · 12/06/2014 18:56

Ds2 hasn't been seen by a paediatrician but as far as I know there was a lead psychologist on the board when they met for the final review.

OT wasn't involved (because ds is insensitive rather over sensitive??)

Agree about the list of things and issues. I probably wasn't ready enough for that, aka my list wasn't strong enough if that makes sense. I really felt I had to prove my case right, left and centre which I wasn't quite ready for. But also I am finding it hard to actually see what is normal it not because we have all adapted to some of his quirks do they feel normal if that makes sense?

Ds is 9yo.

OP posts:
New posts on this thread. Refresh page