Hyper mobility syndrome

[MummyNellie123]

months, and he has been diagnosed with hyper mobility syndrome.

we weren't given any follow up, any support information, any forwarding referral or any advice as to what to do aside....'he will catch up in his own time...by 2 he should be walking'

Is there anyone here whose DC have this condition who would be able to tell me what I can do? shall I arrange a physio session? shall I get a second opinion?

I am very disappointed....it was my DH who took him, I would have make it a point to get the info there and then but my DH as lovely as he is cant negotiate his way/talk his way into/out of anything

Depends how severe the hypermobility is - DD was diagnosed and then referred to a physio, she was 15 months and not able to roll over. By 2, because of the physio, she was walking. Your DD might require physio, or might be able to get to the milestones on her own, but more slowly than other children. I would want to be seen by a physio though, to check.

My DS didn't need physio in the end. We were offered it by the paeds if he wasn't working by 2.5, although I'm assuming it depends what joints it in and how badly. DS rolled on time and say at 9 months but didn't crawl till 14 months and walked at 19 months. He still can't jump or manage more than a small step at 2.5.

My eldest has this (as do I) and it was diagnosed around 1 year. She was walking early (9 months), which is unusual with HMS, but falling a lot because her hips were completely rotated. Even with a full Beighton Score we were told no further physio for now. However we were advised to start her on gymnastics classes and good quality ballet. These have made an enormous and very quick improvement in her joint stability, proprioception, walking, strength and confidence.

The key with HMS is to keep the muscles around the floppy joints as strong as possible. You must always do sport- even a week's holiday can make a difference to strength - but it needs to be muscle building and low impact - sports such as rugby, tennis, squash can cause dislocations. In HMS injuries heal more slowly than normal too so impacts like in rugby should be avoided.