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18 mo dd Milestones late and v worried

12 replies

DreadfulSpiller · 21/05/2014 14:01

Hi, this is my first post on SN, but id thought id come straight here rather than behaviour/development. I've just re read what I've posted and it's a massive ramble I'm afraid, but it's taken some courage to write it, so I'll leave it as is. Just looking for some advice, support from others who've been in a similar situation I guess?

My 18 mo dd2 isn't walking or talking yet and has been late with other milestones. She pushes her trolley along and walks with our hands and has done for about 3 months. DD1 (6) walked at 17 mo and is hyper mobile so haven't been particularly worried about the physical side, more the cognitive/communication side.

her sleep was dreadful for a long time,but has improved since about 15 months. Still breast feed her in the morning and night as its the only way to calm her when she wakes up. Otherwise she just flings herself backwards flailing uncontrollably and sobs.

She waved and clapped at 17 mo, but the wave is like a floppy hand up and down, but does seem to get it now I think. Clapping is sporadic and won't really do it 'to order'. pointing was at about 17 mo, it is with index finger about 50% of time, outstretched hand etc the rest. She will follow a point, Reach out for dogs/cars etc in the street and point out things such as a dog, lion in a book. She has shared interest with some things, eg if we watch 'Night Garden' she will reach out or point at the telly and look back at me laughing/smiling.she loves peekaboo.

Her eye contact with me is good, but if anyone outside of the family talks to her, she just turns away. she will not engage with them. She loves her sister, and is better with older children, but other children her age make her uncomfortable, she will move away, lie on the floor etc as she just cannot cope. we've started a v calm music group that she is getting used to slowly, but I avoid toddler groups tbh. If a child takes something from her she just crumples and is V upset. But wouldn't retaliate.

Her speech is also behind, she tries to say hello when waving, but it comes it v mangled. She seems to stick her tongue out alot at the moment and does it in an 'odd' way when attempting to make some sounds. She clicks her tongue for duck sound and does the horse clip clop sound, oof for woof and ooh ooh, monkey and sssss snake. But that's it. She loves nursery rhymes. But can't do actions etc. she points to your nose if asked, and toes, but other body parts are a bit pot luck.

She came on quite a bit at 17 mo, but hasn't moved on again. At the moment her sleep has dipped again, she seems Ill but with no symptoms iykwim, easy to fall, easy to sob, Keeps lying on the floor and kicking legs like a baby on its back, her canines are coming through so some of this am be due to that, but the developmental stuff is def not teething. I was with a friend and her 10 mo dd, she engages much more than dd2, clapping, waving, always looking at other people and smiling and giggling, passing the ball back between us etc, made for v depressing watching tbh.

She seems quite a long way behind her peers tbh and am sick with worry. I think about it all day and night. My nephew has Aspergers, he is now 13yo and much more settled, but I've seen first hand how difficult for the entire family such a developmental problem can have, I feel so worried about dd1 who is in year 1 aNd so happy and settled, but I can feel myself neglecting her more and more whilst I deal with dd2 and am scared for the future and the effect any problems DD1 has will have on her.

I went to the HV with my concerns 2 months ago, who was useless tbh, the GP a bit better, he said of things hadn't cimproved in 3 months to come back and he'd refer us. I suppose Im asking if you think I need to go back to him, I think I know the answer but I can't quite face it. DH just keeps saying 'she's fine'. He is out of the house each weekday from 6-8pm, do he just doesn't see it day to day, he also has no idea what an 18 mo should be doing tbh. TIA.

OP posts:
nahidontthinkso · 21/05/2014 14:20

Take her back to the GP if he was willing to refer her. The sooner she can be seen in development clinic the sooner she can be treated and assessed if needed. Smile

PolterGoose · 21/05/2014 15:57

This reply has been deleted

Message withdrawn at poster's request.

DreadfulSpiller · 21/05/2014 18:52

Hi both, many thanks for posting. Yes I've seen the fact files from some of your previous posts Polter, many thanks. I've started to keep notes in the past week and will continue to do so. I've also made an appt with the GP for end of next week, the earliest I could get to see our named GP. Who to be fair was quite understanding and didn't dismiss me, just said wait for a few months.
Just been to one of DD1s after school activities, DD2 spent the entire time sobbing, flailing ... Same at a friends house this morning (whilst the chatty, happy 16mo played as did the 10 month old), and same at dd1s assembly this morning, until I took her out and she says away from people. So i missed that, tears from us all

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nahidontthinkso · 21/05/2014 18:58

It must be so distressing for you to see her like that. It sounds like something isn't quite right with her so you are doing the right thing asking for a referral. Its best to get things moving as soon as possible because it sometimes take a while for them to get all the assessments done and finding out what the problem is. At least once your referred your foot is in the door and its harder for them to shut you out!

PolterGoose · 21/05/2014 19:08

This reply has been deleted

Message withdrawn at poster's request.

DreadfulSpiller · 21/05/2014 19:31

Yes I think 'something isn't quite right'. You are right, and I've read many previous posters say the same, act on instincts and get early appts as referrals can be a long wait.

I was a v shy child and had to have speech therapy but itsv hazy as to why, I need to speak to my mum and find out more.

Thx for tea and cake, ive just poured a glass of wine, actually got DD2 into bed at a reasonable time, so going to watch doo with DD1 and read to her, simple pleasures good for the soul! Haven't even managed such basic things with her for ages.

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jess1975 · 21/05/2014 20:13

Hi my ds is almost 4 and I also had similar concerns. I finally plucked up the courage to speak to the HV when he was around 20 months old who said to wait until his two year assessment as time went on it was becoming increasingly obvious there was huge problems with him. At his two year check she referred him to a salt (we waited 3 months on appt). The salt took one look at him and said he would need to go to Childrens Dev Centre but again there was long lists which was very frustrating and we ended up seeking private help who were spot on with their diagnosis. It's absolutely heart breaking but I think when your in the system you feel a lot better as you know that help is on its way. At the beginning of all this I couldn't talk to anyone about my ds without bursting into tears. Good luck x

Obstacles · 21/05/2014 20:35

It's tricky because mostly your dd is just about within the range for where she should be. Particularly if there is a family history of being slow to walk and talk.

But your gut is that something is not right so you need to act on that.

It is possible that she is just naturally a bit slower to achieve milestones but that is being exacerbated by undiagnosed medical problems. So worth checking out glue ear and any problems l

Obstacles · 21/05/2014 20:37

Posted too soon! Problems like reflux, dairy intolerances.

DreadfulSpiller · 21/05/2014 20:37

Jess, thanks for your reply. I hope that your DS is now getting the help he needs and that things are a bit easier? I guess he isn't at school yet? What was your diagnosis? You are right about the bursting into tears, I was sobbing outside the assembly embarrassingly today, with DD1 asking what was wrong. I hate letting her see me upset, so just said I was sad about missing her assembly, then sobbed on a friend from school after I couldn't face the music group today. She was v nice, but clearly didn't know what to do with an anxious, overly emotional wreck like me at the moment. I've got a coffee morning with at least 2 children the same age tomorrow and am dreading it, am aware that I can't shut us away though, I need to get out tbh.
Cn I ask what your concerns were at the time jess?

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jess1975 · 22/05/2014 07:02

Hi My ds is at nursery within a special school. He will be at special school until he's 19. His diagnosis his asd, severe learning disability and recently sleep disorder. Your daughter sounds further on than my ds. I've been going to lots of special needs groups and have yet to find someone as severe as him. My main concerns were he didn't wave bye, didn't point, couldn't play with toys, didn't respond to his name, no eye contact, hand flapped and then later started to jump on spot and bite his hand. At times he may have said the odd word (he's still non-verbal) but we would never hear the word again. He didn't understand any language at all and nor could he follow even the simplest of instructions. He was just in his own world most of the day and extremely hard to engage. Most of the time he ignores us. He's such a wee blessing though and taught our family so so much. As I said before my ds is very very severe so please don't be over concerned. The fact that your dd is waving and pointing is great. My ds is still not doing these things. Any other questions please ask.

DreadfulSpiller · 22/05/2014 13:26

Hi jess, thanks for posting back. I hope your little man is enjoying nursery and that he is getting the help he needs, it must be very difficult. Thanks for your kind words as well.

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